Dr Nikita Hayden
School of Education
Research Associate
n.hayden@sheffield.ac.uk
The Wave
Full contact details
Dr Nikita Hayden
School of Education
The Wave
2 Whitham Road
Sheffield
S10 2AH
School of Education
The Wave
2 Whitham Road
Sheffield
S10 2AH
- Profile
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I am a Research Associate with iHuman and the School of Education at the University of Sheffield. I am currently working as a Research Associate for the Development phase of the Wellcome Anti-Ableism Research Culture project. I previously worked on the ESRC funded project 'Humanising Healthcare', where we employed ethnographic methods, narrative interviews, and co-production to explore examples of humanising healthcare with people with learning disabilities.
- Research interests
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My research work to date has been situated in applied psychology, with a particular focus on families and siblings. My sibling research focuses on siblings of children and adults with learning and developmental disabilities. I am a volunteer Research Associate for the UK charity Sibs and am collaborating with colleagues from various disciplines to establish the Sibling Studies Network. I have experience of quantitative, qualitative, and mixed methods research approaches.
- Publications
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Journal articles
- Family carers of people with intellectual and developmental disabilities’ perceptions of the impact of an online mindfulness programme. Mindfulness. View this article in WRRO
- Open science, health data and epistemic harms: a multidisciplinary reflection. Data Science Journal, 25. View this article in WRRO
- Implementation of online mindfulness with peer mentoring for parent and sibling carers of people with intellectual and developmental disabilities. Journal of Intellectual Disability Research, 70(3), 337-344. View this article in WRRO
- ‘You understand me’: experiences of peer mentors delivering support for a mindfulness intervention to family carers of people with intellectual and developmental disabilities. Journal of Applied Research in Intellectual Disabilities, 38(4). View this article in WRRO
- From pathology to affirmation: disability philosophy in everyday life. Humana Mente, 18(47), 183-205. View this article in WRRO
- Conducting research in real world settings—lessons learned from an implementation and process evaluation of Headsprout Early Reading® in special schools. Frontiers in Education, 10. View this article in WRRO
- Engaging children with developmental disabilities in online data collection procedures: reflections and implications for future research. Tizard Learning Disability Review, 30(3), 178-188. View this article in WRRO
- Wellbeing of family carers of adults with intellectual disabilities during the COVID‐19 pandemic in the UK: longitudinal study. Journal of Intellectual Disability Research, 69(4), 265-273. View this article in WRRO
- “I would not change [my] sibling for the world, Maybe the world can change for my sibling”: the experiences of adult siblings of people with developmental disabilities. Journal of Community & Applied Social Psychology, 34(6). View this article in WRRO
- A narrative review on analysing and reporting research conducted using Talking Mats®, an inclusive communication tool. Technology and Disability, 36(3), 69-84. View this article in WRRO
- Failing ethnographies as post-qualitative possibilities: reflections from critical posthumanities and critical disability studies. Qualitative Research in Psychology, 22(3), 632-655. View this article in WRRO
- Co‐producing ethics guidelines together with people with learning disabilities. British Journal of Learning Disabilities, 52(4), 611-632. View this article in WRRO
- Sibling Relationship and Behavioral Adjustment in Families of Disabled Children: Cross-Lagged Associations. American Journal on Intellectual and Developmental Disabilities, 129(1), 73-85. View this article in WRRO
- Construct validity of the Lifespan Sibling Relationship Scale measuring adult sibling relationship quality where one sibling has intellectual or developmental disabilities. International Journal of Developmental Disabilities, 71(7), 1039-1047. View this article in WRRO
- Reducing the risk of criminal exploitation using multi-systemic therapy (the RESET Study): study protocol for a feasibility study and process evaluation. Pilot and Feasibility Studies, 9(1).
- Development and initial psychometric properties of the Warwick–Edinburgh Mental Wellbeing Scale‐Intellectual Disability version. Journal of Intellectual Disability Research, 67(9), 893-900. View this article in WRRO
- Behavioural adjustment of children with intellectual disability and their sibling is associated with their sibling relationship quality. Journal of Intellectual Disability Research, 67(4), 310-322. View this article in WRRO
- Subjective poverty moderates the association between carer status and psychological outcomes of adult siblings of people with intellectual and developmental disabilities. Journal of Autism and Developmental Disorders, 53(3), 987-999. View this article in WRRO
- A realist review of programs for siblings of children who have an intellectual/developmental disability. Family Relations. View this article in WRRO
- A systematic review and narrative synthesis of mental imagery tasks in people with an intellectual disability: implications for psychological therapies. Clinical Psychology Review, 96. View this article in WRRO
- Access to and use of health and social care services for people with learning disabilities during COVID-19: a longitudinal study. Tizard Learning Disability Review, 27(1), 57-66. View this article in WRRO
- 1000 Families Study, a UK multiwave cohort investigating the well-being of families of children with intellectual disabilities: cohort profile. BMJ Open, 10(2). View this article in WRRO
- Supporting siblings of children with a special educational need or disability: An evaluation of Sibs Talk, a one‐to‐one intervention delivered by staff in mainstream schools. Support for Learning, 34(4), 404-420. View this article in WRRO
- Characters with autism spectrum disorder in fiction: where are the women and girls?. Advances in Autism, 5(1), 50-63. View this article in WRRO
- A population-based study of the behavioral and emotional adjustment of older siblings of children with and without intellectual disability. Journal of Abnormal Child Psychology, 47(8), 1409-1419. View this article in WRRO
- Transforming the community, transforming the self: young people, social action and community leadership. The Sheffield Student Journal for Sociology, 2. View this article in WRRO
Book chapters
- Failing ethnographies as post-qualitative possibilities: reflections from critical posthumanities and critical disability studies, The Critical Posthumanities and Postqualitative Inquiry in Psychology (pp. 74-96). Routledge
- Working with siblings of autistic CYP, Improving Mental Health Therapies for Autistic Children and Young People (pp. 115-132). Routledge
- Family theories and siblings of people with intellectual and developmental disabilities In Hodapp RM, Fidler DJ & Lanfranchi S (Ed.), International Review of Research in Developmental Disabilities (pp. 1-49). Elsevier View this article in WRRO
Conference proceedings
- HUMANISING HEALTHCARE AND PEOPLE WITH INTELLECTUAL DISABILITIES: A CO-PRODUCED NARRATIVE STUDY. JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, Vol. 68(7) (pp 815-815)
- PERSPECTIVES OF YOUNG PEOPLE WITH INTELLECTUAL DISABILITIES AND THEIR SIBLINGS ON THEIR SIBLING RELATIONSHIPS. JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, Vol. 68(7) (pp 737-737)
- PERSPECTIVES OF YOUNG PEOPLE WITH INTELLECTUAL DISABILITIES AND THEIR SIBLINGS ON THEIR SIBLING RELATIONSHIPS. JOURNAL OF INTELLECTUAL DISABILITY RESEARCH, Vol. 67(10) (pp 929-929)
Reports
- Adult siblings of people with intellectual disabilities and/or a diagnosis of autism: an evidence review View this article in WRRO
- Coronavirus and people with learning disabilities study: wave 3 results: September 2023 (Full Report) View this article in WRRO
- Special educational needs in mainstream schools: evidence review View this article in WRRO
- Research to understand successful approaches to supporting the most academically able disadvantaged pupils; research report View this article in WRRO
Presentations
- Understanding the experiences of siblings of people with disabilities webcast script. Online. View this article in WRRO
- Family carers of people with intellectual and developmental disabilities’ perceptions of the impact of an online mindfulness programme. Mindfulness. View this article in WRRO
- Professional activities and memberships
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- Research Associate, School of Education and iHuman, University of Sheffield, Mar 2023 – present
- Honorary Research Fellow, CEDAR, University of Warwick, Apr 2023 – present
- Research Associate, Sibs Charity, Jan 2020 - present