Dr Powell argues that co-production in neurodivergence research aims to involve autistic and neurodivergent people as equal partners, however shallow efforts can leave contributors feeling used or ignored.
As a late-diagnosed autistic and ADHD academic woman, Lauren explores the challenges and proposes a better way forward. She argues that too often, neurodivergent voices are heard but not acted upon, turning co-production into storytelling without power-sharing.
Her commentary outlines six principles for ethical co-production, focusing on equity, transparency, and diverse inclusion, especially for marginalised groups like non-speaking individuals or those with intellectual disabilities.
Dr Powell argues that by valuing lived experience as expertise, ensuring clear feedback, and supporting neurodivergent leadership, research can truly empower communities. She believes that funders and researchers must provide accessible tools, fair pay, and shared decision-making to make co-production meaningful and that this approach not only improves research but also drives real-world change in policy and practice, respecting neurodivergent identities.
The paper is written for researchers, funders, and advocates offering a practical roadmap to transform co-production into a tool for justice and collaboration, ensuring neurodivergent people are partners, not just participants.
Read the full article in Sage Journals: We’re Not Your Empathy Exercise: Reclaiming Co-Production in Neurodivergent Research and Practice.