Dr Catriona Mayland
MBChB, MD, FRCPS (Glas)
School of Medicine and Population Health
Senior Clinical Lecturer in Pallative Medicine
Honorary Consultant in Palliative Medicine
+44 114 226 5213
Full contact details
School of Medicine and Population Health
Room 225, Broomcross Building
Weston Park Hospital
Whitham Road
Sheffield
S10 2SJ
- Profile
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For enquiries please contact - SMPH-West-Operational@sheffield.ac.uk
I joined the University of Sheffield in 2018 after obtaining a Yorkshire Cancer Research (YCR) ‘CONNECTS’ Senior Clinical Research Fellowship. I am also an Honorary Consultant in Palliative Medicine at Sheffield Teaching Hospitals NHS Foundation Trust.
I was awarded my Doctor of Medicine (MD) degree from the University of Liverpool in 2010. My MD evaluated quality of care for dying patients and their families (last days of life) as perceived by bereaved relatives. From this work, I have developed, validated and used my international ‘Care Of the Dying Evaluation’ (CODETM) tool.
My belief that palliative care should help address injustices and inequities drives my research interests. These include complex cancer groups e.g., head and neck cancer, mesothelioma, and improving access and integration of palliative care, including bereavement support, through inclusive methodology.
- Qualifications
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- MBChB, University of Glasgow
- Doctor of Medicine (MD), University of Liverpool
- FRCPS (Glasgow)
- Certificate of Completion of Training (CCT) in Palliative Medicine 2008
- Research interests
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- Palliative and end-of-life care
- Complex cancer groups: Head and neck cancer; mesothelioma
- Health service design and integration of care
- Evaluation of quality of care at the very end-of-life
- Validation and use of outcome measures, including post-bereavement surveys
- Family and informal carer support including bereavement.
I have expertise in mixed methods research and using collaborative, inclusive approaches to capture patient and family experiences. Within the University of Sheffield, I am the co-lead for Theme 5 of the Cancer Strategy, ‘Enhancing Patient Experience and Voice.’
I am the co-lead for the NIHR-funded ‘Palliative Partners – Head and Neck Cancer’ (PP-HANC) and the NIHR RfPB study, ‘Improving healthcare experiences for patients with Head and Neck Cancer’ (ii-HANC). I was awarded a Churchill Fellowship in 2020.
Currently, I am the co-lead for the NIHR-funded PRP study, ‘Equitable bereavement care for all.’
- Publications
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Show: Featured publications All publications
Featured publications
Journal articles
- A qualitative study exploring patient, family carer and healthcare professionals’ direct experiences and barriers to providing and integrating palliative care for advanced head and neck cancer. Journal of Palliative Care, 36(2), 121-129. View this article in WRRO
- A qualitative study of bereaved relatives’ end of life experiences during the COVID-19 pandemic. Palliative Medicine, 35(5), 843-851. View this article in WRRO
- The palliative care needs and experiences of people with advanced head and neck cancer: a scoping review. Palliative Medicine, 35(1), 27-44. View this article in WRRO
- Supporting adults bereaved through COVID-19: a rapid review of the impact of previous pandemics on grief and bereavement. Journal of Pain and Symptom Management, 60(2), e33-e39. View this article in WRRO
- Disease trajectories, place and mode of death in people with head and neck cancer: findings from the ‘Head and Neck 5000’ population-based prospective clinical cohort study. Palliative Medicine, 34(5), 639-650. View this article in WRRO
- Assessing quality of care for the dying from the bereaved relatives’
perspective: using pre-testing survey methods across seven countries to develop an international outcome measure. Palliative Medicine, 33(3), 357-368. View this article in WRRO
- Head and neck cancer: a marginalised group?. Palliative Medicine, 32(8), 1286-1287. View this article in WRRO
- The 'lived experience' of palliative care patients in one acute hospital setting - a qualitative study. BMC Palliative Care, 17. View this article in WRRO
- Assessing the Quality of Care for Dying Patients From the Bereaved Relatives' Perspective: Further Validation of “Evaluating Care and Health Outcomes–for the Dying”. Journal of Pain and Symptom Management, 47(4), 687-696.
- Caring for those who die at home: the use and validation of ‘Care Of the Dying Evaluation’ (CODE) with bereaved relatives. BMJ Supportive & Palliative Care, 4(2), 167-174.
All publications
Journal articles
- Research priorities for cancers of the oesophagus and stomach: recommendations from a UK and Ireland patient and healthcare professional partnership exercise. Gut. View this article in WRRO
- Measuring and monitoring the quality of dying in the United Nations ‘Decade of healthy ageing’. The Lancet Healthy Longevity, 6(7). View this article in WRRO
- Mapping end-of-life care in India: a scoping review to identify gaps in policy, practice, and psychosocial support. BMC Palliative Care, 24. View this article in WRRO
- Acceptability, fidelity and implementation of systematic integrated pain management in oncology outpatient services: a process evaluation protocol for a multicentre clustered randomised pilot trial. BMJ Open, 15(6). View this article in WRRO
- Translation and cultural adaptation of the Chinese version of the International ‘Care Of the Dying Evaluation’ (CODE™) tool for assessing the quality of care for dying patients from the perspective of bereaved family members. BMC Palliative Care, 24(1). View this article in WRRO
- A network approach to addressing the needs of patients with incurable head and neck cancer and their families. Health Technology Assessment. View this article in WRRO
- Urinary metabolite model to predict the dying process in lung cancer patients. communications medicine, 5(49). View this article in WRRO
- Palliative and end-of-life care for patients with pleural mesothelioma: a cohort study. Palliative Medicine, 39(2), 286-297. View this article in WRRO
- Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: results from a national online survey. OMEGA - Journal of Death and Dying, 91(2), 904-931. View this article in WRRO
- Assessing the sensitivity and acceptability of the Royal Marsden Palliative Care Referral “Triggers” Tool for outpatients with cancer. Supportive Care in Cancer, 32(11). View this article in WRRO
- Non-invasive technology to assess hydration status in advanced cancer to explore relationships between fluid status and symptoms: an observational study using bioelectrical impedance analysis. BMC Palliative Care, 23(1). View this article in WRRO
- Recognising dying in motor neurone disease: a scoping review. Palliative Medicine, 38(9), 923-934. View this article in WRRO
- Mechanisms of end-of-life communication contributing to optimal care at the end of life: a review of reviews. BMJ Supportive & Palliative Care, 14(e2), e1622-e1634. View this article in WRRO
- Pandemic narratives in stories about hospice palliative care: The impact of Covid-19 upon ideals of timely, holistic care and quality of life. SSM: Qualitative Research in Health, 5. View this article in WRRO
- Mental health and wellbeing in mesothelioma: a qualitative study exploring what helps the wellbeing of those living with this illness and their informal carers. European Journal of Oncology Nursing, 70. View this article in WRRO
- The mental health and well-being implications of a mesothelioma diagnosis: a mixed methods study. European Journal of Oncology Nursing, 70. View this article in WRRO
- Chapter 15: Palliative care in head and neck cancer. The Journal of Laryngology & Otology, 138(S1), S83-S95. View this article in WRRO
- Understanding patient views and experiences of the IDENTIfication of PALLiative care needs (IDENTI-Pall): a qualitative interview study. British Journal of General Practice, 74(739), e88-e95. View this article in WRRO
- Hospital care for the dying patient with cancer: does an advance care planning invitation influence bereaved relatives’ experiences? A two country survey. BMJ Supportive & Palliative Care, 13, e1038-e1047. View this article in WRRO
- Exploration of pain assessment and management processes in oncology outpatient services with healthcare professionals: a qualitative study. BMJ Open, 13(12). View this article in WRRO
- GC-MS techniques investigating potential biomarkers of dying in the last weeks with lung cancer. International Journal of Molecular Sciences, 24(2).
- The impact of Covid-19 pandemic on hospices: a systematic integrated review and synthesis of recommendations for policy and practice. Health Open Research, 4. View this article in WRRO
- What do bereaved relatives of cancer patients dying in hospital want to tell us? Analysis of free-text comments from the International Care of the Dying Evaluation (i-CODE) survey: a mixed methods approach. Supportive Care in Cancer, 31(1). View this article in WRRO
- Role and response of primary healthcare services in community end-of-life care during COVID-19: qualitative study and recommendations for primary palliative care delivery. Palliative Medicine, 37(2), 235-243. View this article in WRRO
- ‘Sadly I think we are sort of still quite white, middle-class really’ – Inequities in access to bereavement support: findings from a mixed methods study. Palliative Medicine, 37(4), 586-601.
- The impact of Covid-19 pandemic on hospices: a systematic integrated review and synthesis of recommendations for policy and practice. AMRC Open Research, 4.
- Measuring quality of dying, death and end-of-life care for children and young people : a scoping review of available tools. Palliative Medicine, 36(8), 1186-1206. View this article in WRRO
- Addressing inequitable access to hospice care. BMJ Supportive & Palliative Care, 12(3), 302-304. View this article in WRRO
- Understanding patient views and experiences of the IDENTIfication of PALLiative care needs (IDENTI-Pall) : a qualitative interview study protocol. BMJ Open, 12(6).
- Views of care at end of life: a secondary analysis of online feedback using care opinion. Journal of Patient Experience, 9.
- Validation of ‘Care Of the Dying Evaluation’ (CODETM) within an international study exploring bereaved relatives’ perceptions about quality of care in the last days of life. Journal of Pain and Symptom Management, 64(1), E23-E33. View this article in WRRO
- Risk factors associated with poorer experiences of end-of-life care and challenges in early bereavement : results of a national online survey of people bereaved during the COVID-19 pandemic. Palliative Medicine, 36(4), 717-729. View this article in WRRO
- Service change and innovation in community end-of-life care during the COVID-19 pandemic: qualitative analysis of a nationwide primary care survey. Palliative Medicine, 36(1), 161-170. View this article in WRRO
- What do we know about the impact of the Covid-19 pandemic on hospices? A collaborative multi-stakeholder knowledge synthesis [version 1; peer review: 3 approved]. AMRC Open Research, 3. View this article in WRRO
- One chance to get it right: improving clinical handovers for better symptom control at the end of life.. BMJ Open Quality, 10(3).
- Experiences of preparing children for a death of an important adult during the COVID-19 pandemic: a mixed methods study. BMJ Open, 11(8).
- Bereavement care for ethnic minority communities : a systematic review of access to, models of, outcomes from, and satisfaction with, service provision. PLoS ONE, 16(6).
- Community end-of-life care during COVID-19 : findings of a UK primary care survey. BJGP Open, 5(4). View this article in WRRO
- Validation of “Care of the Dying Evaluation” in emergency medicine (CODEEM): pilot phase of End-of-life Management Protocol Offered Within Emergency Room (EMPOWER) study. Annals of Palliative Medicine, 10(6), 6145-6155. View this article in WRRO
- Good quality care for patients with cancer dying in hospitals, but information needs not met : bereaved relatives’ survey within seven countries. The Oncologist, 26(7), e1273-e1284.
- Are public health measures and individualised care compatible in the face of a pandemic? A national observational study of bereaved relatives’ experiences during the COVID-19 pandemic. Palliative Medicine, 35(8), 1480-1491. View this article in WRRO
- Health and social care professionals’ experiences of providing end of life care during the COVID-19 pandemic: A qualitative study. Palliative Medicine, 35(7), 1249-1257. View this article in WRRO
- A qualitative study exploring patient, family carer and healthcare professionals’ direct experiences and barriers to providing and integrating palliative care for advanced head and neck cancer. Journal of Palliative Care, 36(2), 121-129. View this article in WRRO
- A qualitative study of bereaved relatives’ end of life experiences during the COVID-19 pandemic. Palliative Medicine, 35(5), 843-851. View this article in WRRO
- British Association of Head and Neck Oncologists (BAHNO) standards 2020. Journal of Oral Pathology & Medicine, 50(3), 262-273.
- The palliative care needs and experiences of people with advanced head and neck cancer: a scoping review. Palliative Medicine, 35(1), 27-44. View this article in WRRO
- Percutaneous cervical cordotomy for cancer-related pain : national data. BMJ Supportive and Palliative Care, 10(4), 429-434. View this article in WRRO
- Supporting adults bereaved through COVID-19: a rapid review of the impact of previous pandemics on grief and bereavement. Journal of Pain and Symptom Management, 60(2), e33-e39. View this article in WRRO
- Factors affecting quality of end-of-life hospital care - a qualitative analysis of free text comments from the i-CODE survey in Norway. BMC Palliative Care, 19. View this article in WRRO
- General practitioners’ perceptions of compassionate communities : a qualitative study. BMC Palliative Care, 19. View this article in WRRO
- Disease trajectories, place and mode of death in people with head and neck cancer: findings from the ‘Head and Neck 5000’ population-based prospective clinical cohort study. Palliative Medicine, 34(5), 639-650. View this article in WRRO
- Bioelectrical impedance vector analysis (BIVA) as a method to compare body composition differences according to cancer stage and type. Clinical Nutrition ESPEN, 30, 59-66. View this article in WRRO
- Assessing quality of care for the dying from the bereaved relatives’
perspective: using pre-testing survey methods across seven countries to develop an international outcome measure. Palliative Medicine, 33(3), 357-368. View this article in WRRO
- Quality assurance for care of the dying: engaging with clinical services to facilitate a regional cross-sectional survey of bereaved relatives' views. BMC Health Services Research, 18. View this article in WRRO
- Head and neck cancer: a marginalised group?. Palliative Medicine, 32(8), 1286-1287. View this article in WRRO
- The 'lived experience' of palliative care patients in one acute hospital setting - a qualitative study. BMC Palliative Care, 17. View this article in WRRO
- How well do we currently care for our dying patients in acute hospitals: the views of the bereaved relatives?. BMJ Supportive & Palliative Care, 7(3), 316-325.
- P-57 Patient experience: the real stories. Poster Presentations, A21.1-A21.
- Collecting biological material from palliative care patients in the last weeks of life: a feasibility study. BMJ Open, 6(11).
- The Association of Hydration Status with Physical Signs, Symptoms and Survival in Advanced Cancer—The Use of Bioelectrical Impedance Vector Analysis (BIVA) Technology to Evaluate Fluid Volume in Palliative Care: An Observational Study. PLOS ONE, 11(9).
- A qualitative exploration of the lived experience of inpatients receiving support from the hospital specialist palliative care team (HSPCT), in one acute hospital setting. BMJ Supportive & Palliative Care, 6(3), 387.1-387. View this article in WRRO
- Longitudinal bioimpedance assessments to evaluate hydration in POEMS syndrome. BMJ Supportive and Palliative Care, 6(3), 369-372. View this article in WRRO
- Using volunteers to support end-of-life care. Nursing Times, 112(14), 12-14.
- Analysis of deaths between 2007 and 2012 of patients with cancer of the head and neck on a surgical ward at a regional centre and in an independent hospice. British Journal of Oral and Maxillofacial Surgery, 54(1), 62-67.
- The potential therapeutic value for bereaved relatives participating in research: An exploratory study. Palliative and Supportive Care, 14(5), 479-487.
- Where do patients treated for oral cancer die? A 20-year cohort study 1992-2011. British Journal of Oral and Maxillofacial Surgery, 53(10), 1015-1020.
- What influences attitudes towards clinically assisted hydration in the care of dying patients? A review of the literature. BMJ Supportive & Palliative Care, 5(3), 223-231.
- Place and time of death in patients treated with palliative intent for oral cancer. British Journal of Oral and Maxillofacial Surgery, 52(5), 458-460.
- Assessing the Quality of Care for Dying Patients From the Bereaved Relatives' Perspective: Further Validation of “Evaluating Care and Health Outcomes–for the Dying”. Journal of Pain and Symptom Management, 47(4), 687-696.
- Caring for those who die at home: the use and validation of ‘Care Of the Dying Evaluation’ (CODE) with bereaved relatives. BMJ Supportive & Palliative Care, 4(2), 167-174.
- CLINICAL OUTCOME MEASURES WITHIN A SPECIALIST PALLIATIVE CARE SERVICE (SPCS): DO THEY PROVIDE ADDED VALUE?. BMJ Supportive & Palliative Care, 4(Suppl 1), A100.1-A100.
- ‘BEING WITH YOU’. EVALUATION OF A NOVEL ‘VOLUNTEER COMPANIONSHIP TRAINING PROGRAMME’ FOR SUPPORTING END-OF-LIFE CARE WITHIN AN ACUTE HOSPITAL SETTING. BMJ Supportive & Palliative Care, 4(Suppl 1), A80.1-A80.
- CARING FOR THOSE WHO DIE AT HOME – THE USE AND VALIDATION OF ‘CARE OF THE DYING EVALUATION’ (CODE) WITH BEREAVED RELATIVES. BMJ Supportive & Palliative Care, 4(Suppl 1), A40.2-A40.
- SUPPORTING PATIENTS AND THEIR FAMILIES WHO WISH TO DIE AT HOME - BEREAVED RELATIVES' VIEWS ABOUT THE CARE AND SUPPORT RECEIVED. BMJ Supportive & Palliative Care, 4(1), 108.2-108.
- WHAT IS THE QUALITY OF END OF LIFE CARE FOR THOSE WHO DIE AT HOME? A STUDY TO EXPLORE THE VIEWS AND EXPERIENCES OF BEREAVED CARERS'. BMJ Supportive & Palliative Care, 4(Suppl 1), A46.2-A46.
- THE ASSESSMENT OF HYDRATION IN ADVANCED CANCER PATIENTS USING BIOELECTRICAL IMPEDANCE ANALYSIS. BMJ Supportive & Palliative Care, 4(Suppl 1), A3.2-A3.
- Quality for end-of-life care for those who died at home:views and experiences of bereaved relatives and carers.. International Journal of Palliative Nursing, 4, 687-696.
- Quality of end-of-life care for those who die at home: views and experiences of bereaved relatives and carers. International Journal of Palliative Nursing, 20(2), 63-63.
- Patients want to be involved in end-of-life care research. BMJ Supportive & Palliative Care, 3(4), 457-457.
- Does the 'Liverpool Care Pathway' facilitate an improvement in quality of care for dying cancer patients?. British Journal of Cancer, 108(10), 1942-1948. View this article in WRRO
- Hydration in Advanced Cancer: Can Bioelectrical Impedance Analysis Improve the Evidence Base? A Systematic Review of the Literature. Journal of Pain and Symptom Management, 46(3), 433-446.e6.
- Lung cancer and rehabilitation—what are the barriers? Results of a questionnaire survey and the development of regional lung cancer rehabilitation standards and guidelines. Supportive Care in Cancer, 20(12), 3247-3254.
- Clinical innovation through leadership development. BMJ Supportive & Palliative Care, 2(Suppl 1), A90.1-A90.
- Assessing quality of care for the dying: The development and initial validation of a postal self-completion questionnaire for bereaved relatives. Palliative Medicine, 26(7), 897-907.
- Variation in attitudes towards artificial hydration at the end of life. Current Opinion in Supportive & Palliative Care, 5(3), 265-272.
- 3024 POSTER Variation in Attitudes Towards Artificial Hydration at the End of Life -a Systematic Literature Review. European Journal of Cancer, 47, S229-S229.
- Improving care in the last days and hours of life: the role of the Liverpool Care Pathway. MIMS Oncology and Palliative Care, 4(4), 10-12.
- How well do current instruments using bereaved relatives’ views evaluate care for dying patients?. Palliative Medicine, 22(2), 133-144.
- How should we measure emesis in palliative care?. Palliative Medicine, 21(5), 369-383.
- Vitamin C deficiency in cancer patients. Palliative Medicine, 19(1), 17-20.
- Suicidal Intent in the Palliative Care Setting. Journal of Palliative Care, 20(2), 119-120.
- Micronutrient concentrations in patients with malignant disease: effect of the inflammatory response. Annals of Clinical Biochemistry: International Journal of Laboratory Medicine, 41(2), 138-141.
- Book Review: Critical Moments – Death and Dying in Intensive Care. Palliative Medicine, 16(2), 172-172.
- Investigation of an integrated standardised pain assessment and management tool in addition to usual care versus usual care alone in oncology outpatient clinics for adults with pain: the CAPTURE cluster randomised pilot trial protocol.. Pilot and Feasibility Studies.
- Patient perceptions of advance care planning within primary care: a systematic review of facilitators and barriers. BMC Palliative Care.
Book chapters
- Palliative care issues in head and neck cancers In Cherny NI, Fallon MT, Kaasa S, Portenoy RK & Currow DC (Ed.), Oxford Textbook of Palliative Medicine (pp. 918-926). Oxford University PressOxford
- Palliative care for head and neck cancer, Scott Brown S Otorhinolaryngology and Head and Neck Surgery Volume 3 Head and Neck Surgery Plastic Surgery (pp. 361-368).
- PALLIATIVE CARE FOR HEAD AND NECK CANCER, Scott Browns Otorhinolaryngology and Head and Neck Surgery Eighth Edition Volume 1 3 (pp. 361-368).
- CONTRIBUTORS, Palliative Medicine (pp. xi-xxxii). Elsevier
- Standards of Care, Palliative Medicine (pp. 978-983). Elsevier
- Care of the imminently dying - Standards of care In Walsh TD, Foley KM & Glare P (Ed.), Palliative Medicine Elsevier
- The role and challenges for providing palliative care to head and neck cancer patients In Jones T & Paleri V (Ed.), Otorhinolaryngology
Book reviews
Conference proceedings
- 95 ‘I wouldn’t know who to contact’: understanding and improving healthcare experiences for those with incurable head and neck cancer using serial, qualitative patient interviews. BMJ Supportive and Palliative Care, Vol. 15(Suppl 2) (pp A44-A44). Belfast, Northern Ireland, 20 March 2025 - 20 March 2025. View this article in WRRO
- OP-2 Giving voice to those with incurable head and neck cancer (HNC): understanding and identifying priorities for improving healthcare experiences. BMJ Supportive and Palliative Care, Vol. 15(Suppl 1) (pp A1-A1). Virtual, online, 11 February 2025 - 11 February 2025. View this article in WRRO
- P216 Unravelling pain in malignant pleural mesothelioma: a longitudinal study. ‘The (Richard) Light Fantastic’ – Pleural disease diagnosis and outcomes (pp A236-A237)
- 67 The mental health and well-being implications of a mesothelioma diagnosis: a mixed methods study. Lung Cancer, Vol. 190 (pp 107628-107628)
- 50 Recognising dying in motor neurone disease: a scoping review. Poster Presentations (pp A27.1-A27)
- 5 Caregiver views and expectations about the use of artificial hydration in the management of dying people with advanced cancer: a questionnaire study. Poster Presentations (pp A10.2-A10)
- 159 Non-invasive technology to assess hydration status in advanced cancer to explore relationships between fluid-status and symptoms at the end-of-life: an observational study using bioelectrical impedance analysis. Poster Presentations (pp A68.1-A68)
- 4 Caregiver views and expectations about the use of artificial hydration in the management of dying people with advanced cancer: a questionnaire study. The Marie Curie Research Conference 2023 (pp A1.3-A2)
- 5 Non-invasive technology to assess hydration status in advanced cancer to explore relationships between fluid-status and symptoms at the end-of-life: an observational study using bioelectrical impedance analysis. The Marie Curie Research Conference 2023 (pp A2.1-A2)
- P-180 Caregiver views and expectations about the use of artificial hydration in the management of dying people with advanced cancer: a questionnaire study. Poster Presentations (pp A78.1-A78)
- P-179 Non-invasive technology to assess hydration in advanced cancer to explore relationships between fluid-status and symptoms at the end-of-life: an observational study using bioelectrical impedance analysis (BIA). Poster Presentations (pp A77.2-A78)
- P-121 Managing mucositis in head and neck cancer patients: a service evaluation. Poster Presentations (pp A54.1-A54)
- O-2 Levels of grief, support needs and risk factors among people bereaved during the COVID-19 pandemic: Baseline results from a longitudinal UK online survey. Oral Presentations (pp A1.2-A1)
- Impact of visiting restrictions for the dying during the COVID-19 pandemic on healthcare professionals' quality of life around the world (the CO-LIVE study). QUALITY OF LIFE RESEARCH, Vol. 31 (pp S69-S69)
- 6 End of life and bereavement experiences during the COVID-19 pandemic: Interim results from a national survey of bereaved people. BMJ Supportive and Palliative Care, Vol. 11(Suppl 1) (pp A3-A3). virtual event, 25 March 2021 - 26 March 2021.
- 164 Compassionate communities’: a qualitative study exploring the views of general practitioners. Poster presentations (pp A66.2-A67)
- 13 Exploring experiences and unmet needs for people with advanced head and neck cancer: the views of patients, family carers and healthcare professionals. Oral presentations (pp A5.2-A5)
Reports
- Impact of Covid-19 pandemic on Hospices (ICoH): Staff Cohort Report
- Impact of Covid-19 pandemic on Hospices (ICoH): Senior Management Cohort and Grey Evidence Report
- Impact of Covid-19 pandemic on Hospices (ICoH): Patient Cohort Report
- Impact of Covid-19 pandemic on Hospices (ICoH): Carer Cohort Report
Other
- Percutaneous cervical cordotomy for cancer-related pain: national data (response to letter by Professor S Mercadante). BMJ Supportive & Palliative Care, 10(4), 414-414.
Preprints
- VALIDITY OF SCORING SYSTEM FOR PALLIATIVE CARE IN ONCOLOGY: CODE<sup>TM</sup> – “CARE OF THE DYING EVALUATION”. IS IT IMPORTANT IN ASSESSING END-OF-LIFE PROCESS?, FapUNIFESP (SciELO).
- Assessing the sensitivity and acceptability of the Royal Marsden Palliative Care Referral “Triggers” Tool for out-patients with cancer, Springer Science and Business Media LLC.
- Non-invasive technology to assess hydration status in advanced cancer to explore relationships between fluid status and symptoms: an observational study using bioelectrical impedance analysis, Cold Spring Harbor Laboratory.
- “Sadly I think we are sort of still quite white, middle-class really” – Inequities in access to bereavement support: Findings from a mixed methods study, Cold Spring Harbor Laboratory.
- Factors associated with higher levels of grief and support needs among people bereaved during the pandemic: Results from a national online survey, Cold Spring Harbor Laboratory.
- Community end-of-life care during the COVID-19 pandemic: Initial findings of a UK primary care survey.
- A qualitative study exploring patient, family carer and healthcare professionals’ direct experiences and barriers to providing and integrating palliative care for advanced head and neck cancer. Journal of Palliative Care, 36(2), 121-129. View this article in WRRO
- Grants
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Equitable Bereavement Care for All - An inclusive, qualitative study to improve bereavement services for those from ethnically diverse communities. NIHR Policy-Related Programme Grant.
Understanding and identifying priorities for improving the healthcare experiences of people with incurable head and neck cancer. NIHR Research for Patient Benefit.
Palliative Partners in Head & Neck Cancer – a network approach to addressing the needs of patients & their families. NIHR Palliative and End-of-Life Care Partnership Grant.
MINNOW study – Investigating the Mental health Implications of a mesothelioma diagnosis and developing resources to resources to Optimise Wellbeing. Meso UK
The journey from diagnosis to end-of-life care for patients with Malignant Pleural Mesothelioma (MPM) – a retrospective palliative care review. Meso UK.
The impact and implications of COVID-19 on the relational, social, and healthcare experiences of hospice care in the West Midlands. UKRI Economic and Social Research Council.
The role and response of primary healthcare services in the delivery of palliative care during COVID-19: A mixed methods investigation and co-production of a framework for primary palliative care in pandemics. Royal College of General Practitioners.
Measuring, evaluating & improving the quality of care for dying people & their families. White Rose Collaboration fund.
Cancer Pain-assessment Toolkit for Use in RoutinE oncology outpatient services: a cluster randomised feasibility trial – CAPTURE. Yorkshire Cancer Research.
Pain in malignant pleural mesothelioma: a prospective, longitudinal study. British Lung Foundation.
Integrating palliative care into routine oncological care for head and neck cancer patients (YCR ‘CONNECTS’ Fellowship). Yorkshire Cancer Research.
- Teaching interests
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My teaching interests lie within the field of Palliative Care and in particular focus on symptom control, integration of palliative care, and advance care planning.
I contribute to the MSc (Res) in Translational Oncology at the University of Sheffield as well as the Phase 4 Undergraduate medical course. I am an experienced medical student SSC modules supervisor and Personal and Academic Tutor.
I have supervised one PhD student and one BSc student to completion, and currently supervise two PhD students as well as Academic Clinical Fellows and Research Associates. I welcome enquiries from potential motivated PhD students interested in areas of palliative care.
- Professional activities and memberships
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- Steering Group Member – National Audit for Care at the End of Life (NACEL).
- Advisory Group Member – Sheffield Mesothelioma Research Centre.
- Previous lead for the ‘Cancer Experience’ Group within the Department of Oncology and Metabolism.
- Deputy Lead of the Sheffield Palliative Care Research Group.
- Co-lead for Theme 5 ‘Enhancing Patient Experience and Voice’ for the University of Sheffield Cancer Strategy.