Professor Donna Rowen
BA, MSc, PhD (Sheffield)
Population Health, School of Medicine and Population Health
Professor of Health Economics
+44 114 222 0728
Full contact details
Population Health, School of Medicine and Population Health
Regent Court (ScHARR)
30 Regent Street
Sheffield
S1 4DA
- Profile
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I joined HEDS as a health economist in September 2006. Prior to joining HEDS I worked as a teaching assistant in Economics at the University of Sheffield whilst undertaking a PhD in Economics.
- Research interests
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- Measuring and valuing health and quality of life
- Measuring and valuing child health
- Methodology of developing preference-based measures of health from existing measures
- Mapping between measures to generate utility values
I lead and undertake research and consultancy projects in health economics, particularly relating to deriving health state utility values. I have been involved in the development of several condition-specific preference-based measures from existing instruments including cancer, dementia, diabetes, epilepsy, flushing, common mental health problems and myelofibrosis, and provides advice to the NICE Decision Support Unit. I have also undertaken NICE DSU technical support documents for estimating utilities focussing on mapping and alternative measures to EQ-5D. I have also estimated societal values for burden of illness and end of life as part of EEPRU.
Current projects
My current projects include a study assessing the equivalence of preference elicitation interviews undertaken online and face-to-face to inform the UK valuation of EQ-5D-5L. I am also working on the MACUSTAR project, which involves generating a preference-based measure for dry age-related macular degeneration.
- Publications
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Show: Featured publications All publications
Featured publications
Journal articles
- Assessing the comparative feasibility, acceptability and equivalence of videoconference interviews and face-to-face interviews using the time trade-off technique.. Soc Sci Med, 309, 115227.
- A Systematic Review of the Methodologies and Modelling Approaches Used to Generate International EQ-5D-5L Value Sets.. Pharmacoeconomics, 40(9), 863-882.
- Review of Valuation Methods of Preference-Based Measures of Health for Economic Evaluation in Child and Adolescent Populations: Where are We Now and Where are We Going?. Pharmacoeconomics, 38(4), 325-340.
- PROM Validation Using Paper-Based or Online Surveys: Data Collection Methods Affect the Sociodemographic and Health Profile of the Sample.. Value Health, 22(8), 845-850.
- An Updated Systematic Review of Studies Mapping (or Cross-Walking) Measures of Health-Related Quality of Life to Generic Preference-Based Measures to Generate Utility Values.. Appl Health Econ Health Policy, 17(3), 295-313.
- Estimating a Dutch Value Set for the Pediatric Preference-Based CHU9D Using a Discrete Choice Experiment with Duration.. Value Health, 21(10), 1234-1242.
- The Role of Condition-Specific Preference-Based Measures in Health Technology Assessment.. Pharmacoeconomics, 35(Suppl 1), 33-41.
- International Regulations and Recommendations for Utility Data for Health Technology Assessment.. Pharmacoeconomics, 35(Suppl 1), 11-19.
- Eliciting Societal Preferences for Weighting QALYs for Burden of Illness and End of Life.. Med Decis Making, 36(2), 210-222.
- A comparison of methods for converting DCE values onto the full health-dead QALY scale.. Med Decis Making, 35(3), 328-340.
- Mapping to obtain EQ-5D utility values for use in NICE health technology assessments.. Value Health, 16(1), 202-210.
All publications
Journal articles
- P-654. Health-related Quality of Life Associated with Pneumococcal Disease – A Global Targeted Literature Review and Meta-Analysis. Open Forum Infectious Diseases, 12(Supplement_1).
- EE391 Psychometric Performance of EQ-5D-5L and VILL-UI, a New Condition-Specific Preference-Weighted Measure, in Patients With Age-Related Macular Degeneration: A Macustar Study Report. Value in Health, 27(12), S132-S132.
- The Short Form 6 Dimensions (SF-6D): Development and Evolution. Applied Health Economics and Health Policy, 1-15.
- Development of a novel patient reported outcome measure for health-related quality of life in amyotrophic lateral sclerosis (PROQuALS): study protocol.. Health Qual Life Outcomes, 22(1), 69.
- Who should value children's health and how? An international Delphi study.. Soc Sci Med, 355, 117127.
- Correction to ‘Producing a preference‐based quality of
LIFE measure to quantify the impact ofHYPOGLYCAEMIA on people living with diabetes: A mixed‐methods research protocol’CarltonJ, PowellP, RowenD, BroadleyM, PouwerF, SpeightJ, HellerS, GallMA, RosilioM, ChildCJ, CominsJ, McCrimmonRJ, deGalanB, BrazierJ; Hypo‐RESOLVE CONSORTIUM. Producing a preference‐based quality of LIFE measure to quantify the impact of HYPOGLYCAEMIA on people living with diabetes: a mixed‐methods research protocol. Diabet Med2023 Mar;40(3):e15007. doi: 10.1111/dme.15007.. Diabetic Medicine, 41(8). - Development of a new health-related quality of life measure for people with diabetes who experience hypoglycaemia: the Hypo-RESOLVE QoL.. Diabetologia, 67(8), 1536-1551.
- Evaluation of the measurement properties and validation of the Skindex-16 among patients with acne.. J Am Acad Dermatol, 91(1), 144-146.
- Psychometric performance of the CFQ-R-8D compared to the EQ-5D-3L and SF-6D in people with cystic fibrosis.. J Patient Rep Outcomes, 8(1), 24.
- Assessment of health state utilities associated with adult and pediatric acid sphingomyelinase deficiency (ASMD).. Eur J Health Econ, 25(8), 1437-1448.
- Development and Valuation of a Preference-Weighted Measure in Age-Related Macular Degeneration From the Vision Impairment in Low Luminance Questionnaire: A MACUSTAR Report.. Value Health, 27(5), 642-654.
- Estimating the SF-6Dv1 Value Set for a Population-Based Sample in Lebanon.. Value Health Reg Issues, 42, 100977.
- Exploring the Factors that Drive Clinical Negligence Claims: Stated Preferences of Those Who Have Experienced Unintended Harm.. Patient, 17(3), 301-317.
- The RETRIEVE Checklist for Studies Reporting the Elicitation of Stated Preferences for Child Health-Related Quality of Life.. Pharmacoeconomics, 42(4), 435-446.
- Measuring the overall performance of mental healthcare providers.. Soc Sci Med, 344, 116582.
- Understanding UK public views on normative decisions made to value health-related quality of life in children: A qualitative study.. Soc Sci Med, 340, 116506.
- United States Value Set for the Functional Assessment of Cancer Therapy-General Eight Dimensions (FACT-8D), a Cancer-Specific Preference-Based Quality of Life Instrument.. Pharmacoecon Open, 8(1), 49-63.
- PCR157 Assessment of Health State Utilities for Invasive Pneumococcal Disease, Pneumonia, and Acute Otitis Media in Young Children. Value in Health, 26(12), S478-S479.
- HTA213 Undertaking Studies to Inform Public Policy: Managing Data Collection to Ensure Data Quality in the EQ-5D-5L UK Valuation Through the Use of Independent Quality Control Assessments. Value in Health, 26(12), S361-S361.
- Retest variability and patient reliability indices of quantitative fundus autofluorescence in age-related macular degeneration: a MACUSTAR study report. Scientific Reports, 13(1). View this article in WRRO
- UK Valuation of EQ-5D-5L, a Generic Measure of Health-Related Quality of Life: A Study Protocol.. Value Health, 26(11), 1625-1635.
- Using Age-Specific Values for Pediatric HRQoL in Cost-Effectiveness Analysis: Is There a Problem to Be Solved? If So, How?. Pharmacoeconomics, 41(10), 1165-1174.
- Discrete Choice Experiments in Health State Valuation: A Systematic Review of Progress and New Trends.. Appl Health Econ Health Policy, 21(3), 405-418.
- Randomised comparison of online interviews versus face-to-face interviews to value health states.. Soc Sci Med, 323, 115818.
- Valuing the EQ Health and Wellbeing Short Using Time Trade-Off and a Discrete Choice Experiment: A Feasibility Study.. Value Health, 26(7), 1073-1084.
- Developing an Australian utility value set for MacNew-7D health states.. Qual Life Res, 32(4), 1151-1163.
- Development of the Cystic Fibrosis Questionnaire-Revised-8 Dimensions: Estimating Utilities From the Cystic Fibrosis Questionnaire-Revised.. Value Health, 26(4), 567-578.
- Producing a preference-based quality of LIFE measure to quantify the impact of HYPOGLYCAEMIA on people living with diabetes: A mixed-methods research protocol.. Diabet Med, 40(3), e15007.
- Hypothetical versus experienced health state valuation: a qualitative study of adult general public views and preferences.. Qual Life Res, 32(4), 1187-1197.
- Comparability of automated drusen volume measurements in age-related macular degeneration: a MACUSTAR study report. Scientific Reports, 12. View this article in WRRO
- Convergent validity of EQ-5D with core outcomes in dementia: a systematic review.. Health Qual Life Outcomes, 20(1), 152.
- Assessing the psychometric performance of EQ-5D-5L in dementia: a systematic review.. Health Qual Life Outcomes, 20(1), 139.
- Assessing the comparative feasibility, acceptability and equivalence of videoconference interviews and face-to-face interviews using the time trade-off technique.. Soc Sci Med, 309, 115227.
- A Systematic Review of the Methodologies and Modelling Approaches Used to Generate International EQ-5D-5L Value Sets.. Pharmacoeconomics, 40(9), 863-882.
- Estimation of a Canadian preference-based scoring algorithm for the Veterans RAND 12-Item Health Survey: a population survey using a discrete-choice experiment.. CMAJ Open, 10(3), E589-E598.
- What Matters for Evaluating the Quality of Mental Healthcare? Identifying Important Aspects in Qualitative Focus Groups with Service Users and Frontline Mental Health Professionals.. Patient, 15(6), 669-678.
- Should We Consider Including a Value for “Hope” as an Additional Benefit Within Health Technology Assessment?. Value in Health, 25(9), 1619-1623.
- A Discrete Choice Experiment to Elicit General Population Preferences Around the Factors Influencing the Choice to Make Clinical Negligence Claims.. Value Health, 25(8), 1404-1415.
- Does Changing the Age of a Child to be Considered in 3-Level Version of EQ-5D-Y Discrete Choice Experiment-Based Valuation Studies Affect Health Preferences?. Value Health, 25(7), 1196-1204.
- Exploring the Issues of Valuing Child and Adolescent Health States Using a Mixed Sample of Adolescents and Adults.. Pharmacoeconomics, 40(5), 479-488.
- Valuing quality in mental healthcare: A discrete choice experiment eliciting preferences from mental healthcare service users, mental healthcare professionals and the general population.. Soc Sci Med, 301, 114885.
- The EQ-HWB: Overview of the Development of a Measure of Health and Wellbeing and Key Results.. Value Health, 25(4), 482-491.
- Adolescent valuation of CARIES-QC-U: a child-centred preference-based measure of dental caries.. Health Qual Life Outcomes, 20(1), 18.
- Measuring What Matters: Little Evidence Supporting the Content Validity of EQ-5D in People with Duchenne Muscular Dystrophy and Their Caregivers.. Med Decis Making, 42(2), 139-140.
- Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond.. Qual Life Res, 31(4), 1191-1198.
- Development of a preference-based heart disease-specific health state classification system using MacNew heart disease-related quality of life instrument.. Qual Life Res, 31(1), 257-268.
- Valuing child and adolescent health: a qualitative study on different perspectives and priorities taken by the adult general public.. Health Qual Life Outcomes, 19(1), 222.
- Vignette-Based Utilities: Usefulness, Limitations, and Methodological Recommendations.. Value Health, 24(6), 812-821.
- Development of a New Quality of Life Measure for Duchenne Muscular Dystrophy Using Mixed Methods: The DMD-QoL.. Neurology, 96(19), e2438-e2450.
- The Functional Assessment of Cancer Therapy Eight Dimension (FACT-8D), a Multi-Attribute Utility Instrument Derived From the Cancer-Specific FACT-General (FACT-G) Quality of Life Questionnaire: Development and Australian Value Set.. Value Health, 24(6), 862-873.
- Deriving a Preference-Based Measure for People With Duchenne Muscular Dystrophy From the DMD-QoL.. Value Health, 24(10), 1499-1510.
- What is the best approach to adopt for identifying the domains for a new measure of health, social care and carer-related quality of life to measure quality-adjusted life years? Application to the development of the EQ-HWB?. Eur J Health Econ, 22(7), 1067-1081.
- Challenges, facilitators and barriers to screening study participants in early disease stages-experience from the MACUSTAR study. BMC Medical Research Methodology, 21. View this article in WRRO
- Discrete choice experiments or best-worst scaling? A qualitative study to determine the suitability of preference elicitation tasks in research with children and young people.. J Patient Rep Outcomes, 5(1), 26.
- A Review of the Psychometric Performance of Selected Child and Adolescent Preference-Based Measures Used to Produce Utilities for Child and Adolescent Health.. Value Health, 24(3), 443-460.
- Estimating a Preference-Based Index for Mental Health From the Recovering Quality of Life Measure: Valuation of Recovering Quality of Life Utility Index.. Value Health, 24(2), 281-290.
- Selection and validation of a classification system for a child-centred preference-based measure of oral health-related quality of life specific to dental caries.. J Patient Rep Outcomes, 4(1), 105.
- Valuing the AD-5D Dementia Utility Instrument: An Estimation of a General Population Tariff.. Pharmacoeconomics, 38(8), 871-881.
- Clinical study protocol for a low-interventional study in intermediate age-related macular degeneration developing novel clinical endpoints for interventional clinical trials with a regulatory and patient access intention—MACUSTAR. Trials, 21(1).
- A Review of the Methods Used to Generate Utility Values in NICE Technology Assessments for Children and Adolescents.. Value Health, 23(7), 907-917.
- Valuing the SF-6Dv2 classification system in the United Kingdom using a discrete-choice experiment with duration. Medical Care, 58(6), 566-573. View this article in WRRO
- Developing a New Version of the SF-6D Health State Classification System From the SF-36v2: SF-6Dv2.. Med Care, 58(6), 557-565.
- Review of Valuation Methods of Preference-Based Measures of Health for Economic Evaluation in Child and Adolescent Populations: Where are We Now and Where are We Going?. Pharmacoeconomics, 38(4), 325-340.
- Assessment of the psychometric properties and refinement of the Health and Self-Management in Diabetes Questionnaire (HASMID).. Health Qual Life Outcomes, 18(1), 59.
- Examining the Feasibility and Acceptability of Valuing the Arabic Version of SF-6D in a Lebanese Population.. Int J Environ Res Public Health, 17(3).
- U.K. utility weights for the EORTC QLU-C10D.. Health Econ, 28(12), 1385-1401.
- PROM Validation Using Paper-Based or Online Surveys: Data Collection Methods Affect the Sociodemographic and Health Profile of the Sample.. Value Health, 22(8), 845-850.
- Valuing health-related quality of life in heart failure: a systematic review of methods to derive quality-adjusted life years (QALYs) in trial-based cost-utility analyses.. Heart Fail Rev, 24(4), 549-563.
- An Updated Systematic Review of Studies Mapping (or Cross-Walking) Measures of Health-Related Quality of Life to Generic Preference-Based Measures to Generate Utility Values.. Appl Health Econ Health Policy, 17(3), 295-313.
- MACUSTAR: Entwicklung und klinische Validierung von funktionellen, strukturellen und patientenberichteten Endpunkten bei intermediärer altersabhängiger Makuladegeneration. Der Ophthalmologe, 116(12), 1186-1193.
- Producing a preference-based quality of life measure for people with Duchenne muscular dystrophy: a mixed-methods study protocol.. BMJ Open, 9(3), e023685.
- Valuation of preference-based measures: can existing preference data be used to select a smaller sample of health states?. Eur J Health Econ, 20(2), 245-255.
- Future Directions in Valuing Benefits for Estimating QALYs: Is Time Up for the EQ-5D?. Value Health, 22(1), 62-68.
- MACUSTAR: Development and Clinical Validation of Functional, Structural, and Patient-Reported Endpoints in Intermediate Age-Related Macular Degeneration.. Ophthalmologica, 241(2), 61-72.
- Estimating a Dutch Value Set for the Pediatric Preference-Based CHU9D Using a Discrete Choice Experiment with Duration.. Value Health, 21(10), 1234-1242.
- Estimating a Preference-Based Single Index Measuring the Quality-of-Life Impact of Self-Management for Diabetes.. Med Decis Making, 38(6), 699-707.
- Developing a dementia-specific preference--based quality of life measure (AD-5D) in Australia: a valuation study protocol.. BMJ Open, 8(1), e018996.
- Using a Discrete-Choice Experiment Involving Cost to Value a Classification System Measuring the Quality-of-Life Impact of Self-Management for Diabetes.. Value Health, 21(1), 69-77.
- Australian Utility Weights for the EORTC QLU-C10D, a Multi-Attribute Utility Instrument Derived from the Cancer-Specific Quality of Life Questionnaire, EORTC QLQ-C30.. Pharmacoeconomics, 36(2), 225-238.
- Experience-based utility and own health state valuation for a health state classification system: why and how to do it.. Eur J Health Econ, 19(6), 881-891.
- Estimating an exchange rate between the EQ-5D-3L and ASCOT.. Eur J Health Econ, 19(5), 653-661.
- Sourcing and Using Appropriate Health State Utility Values in Economic Models in Health Care.. Pharmacoeconomics, 35(Suppl 1), 7-9.
- The Use of Mapping to Estimate Health State Utility Values.. Pharmacoeconomics, 35(Suppl 1), 57-66.
- The Role of Condition-Specific Preference-Based Measures in Health Technology Assessment.. Pharmacoeconomics, 35(Suppl 1), 33-41.
- A Review of Generic Preference-Based Measures for Use in Cost-Effectiveness Models.. Pharmacoeconomics, 35(Suppl 1), 21-31.
- International Regulations and Recommendations for Utility Data for Health Technology Assessment.. Pharmacoeconomics, 35(Suppl 1), 11-19.
- Developing preference-based measures for diabetes: DHP-3D and DHP-5D.. Diabet Med, 34(9), 1264-1275.
- Developing a questionnaire to determine the impact of self-management in diabetes: giving people with diabetes a voice.. Health Qual Life Outcomes, 15(1), 146.
- Comparing Generic and Condition-Specific Preference-Based Measures in Epilepsy: EQ-5D-3L and NEWQOL-6D.. Value Health, 20(4), 687-693.
- Predicting Productivity Losses from Health-Related Quality of Life Using Patient Data.. Appl Health Econ Health Policy, 15(5), 597-614.
- Condition-specific or generic preference-based measures in oncology? A comparison of the EORTC-8D and the EQ-5D-3L.. Qual Life Res, 26(5), 1163-1176.
- Estimating informal care inputs associated with EQ-5D for use in economic evaluation.. Eur J Health Econ, 17(6), 733-744.
- QLU-C10D: a health state classification system for a multi-attribute utility measure based on the EORTC QLQ-C30.. Qual Life Res, 25(3), 625-636.
- Eliciting Societal Preferences for Weighting QALYs for Burden of Illness and End of Life.. Med Decis Making, 36(2), 210-222.
- Comparison of Modes of Administration and Alternative Formats for Eliciting Societal Preferences for Burden of Illness.. Appl Health Econ Health Policy, 14(1), 89-104.
- Using a discrete choice experiment to value the QLU-C10D: feasibility and sensitivity to presentation format.. Qual Life Res, 25(3), 637-649.
- Mapping Functions in Health-Related Quality of Life. Medical Decision Making, 35(7), 912-926.
- Deriving a Preference-Based Measure for Myelofibrosis from the EORTC QLQ-C30 and the MF-SAF.. Value Health, 18(6), 846-855.
- A comparison of methods for converting DCE values onto the full health-dead QALY scale.. Med Decis Making, 35(3), 328-340.
- Testing mapping algorithms of the cancer-specific EORTC QLQ-C30 onto EQ-5D in malignant mesothelioma.. Health Qual Life Outcomes, 13, 6.
- An exploratory study to test the impact on three "bolt-on" items to the EQ-5D.. Value Health, 18(1), 52-60.
- Comparison of general population, patient, and carer utility values for dementia health states.. Med Decis Making, 35(1), 68-80.
- Patient-reported utilities in advanced or metastatic melanoma, including analysis of utilities by time to death. Health and Quality of Life Outcomes, 12(1).
- Deriving a preference-based utility measure for cancer patients from the European Organisation for the Research and Treatment of Cancer's Quality of Life Questionnaire C30: a confirmatory versus exploratory approach.. Patient Relat Outcome Meas, 5, 119-129.
- From KIDSCREEN-10 to CHU9D: creating a unique mapping algorithm for application in economic evaluation.. Health Qual Life Outcomes, 12, 134.
- Preparatory study for the revaluation of the EQ-5D tariff: methodology report.. Health Technol Assess, 18(12), vii-191. View this article in WRRO
- Use of generic and condition-specific measures of health-related quality of life in NICE decision-making: a systematic review, statistical modelling and survey.. Health Technol Assess, 18(9), 1-224. View this article in WRRO
- Valuations of epilepsy-specific health states: a comparison of patients with epilepsy and the general population.. Epilepsy Behav, 36, 12-17.
- Exploring the consistency of the SF-6D.. Value Health, 16(6), 1023-1031.
- Common scale valuations across different preference-based measures: estimation using rank data.. Med Decis Making, 33(6), 839-852.
- Predicting SF-6D from the European Organization for Treatment and Research of Cancer Quality of Life Questionnaire scores in patients with colorectal cancer.. Value Health, 16(2), 373-384.
- Development of DEMQOL-U and DEMQOL-PROXY-U: generation of preference-based indices from DEMQOL and DEMQOL-PROXY for use in economic evaluation.. Health Technol Assess, 17(5), v-140.
- Binary choice health state valuation and mode of administration: head-to-head comparison of online and CAPI.. Value Health, 16(1), 104-113. View this article in WRRO
- Mapping to obtain EQ-5D utility values for use in NICE health technology assessments.. Value Health, 16(1), 202-210.
- Estimating a preference-based index from the Clinical Outcomes in Routine Evaluation-Outcome Measure (CORE-OM): valuation of CORE-6D.. Med Decis Making, 33(3), 381-395.
- Comparison of generic, condition-specific, and mapped health state utility values for multiple myeloma cancer.. Value Health, 15(8), 1059-1068.
- Response to Comments on Mulhern et al., "Improving the Measurement of QALYs in Dementia: Developing Patient- and Carer-Reported Health State Classification Systems Using Rasch Analysis".. Value Health, 15(5), 787-788.
- Developing and testing methods for deriving preference-based measures of health from condition-specific measures (and other patient-based measures of outcome).. Health Technol Assess, 16(32), 1-114.
- Mapping the Functional Assessment of Cancer Therapy-general or -Colorectal to SF-6D in Chinese patients with colorectal neoplasm.. Value Health, 15(3), 495-503.
- The development of a QALY measure for epilepsy: NEWQOL-6D.. Epilepsy Behav, 24(1), 36-43.
- Improving the measurement of QALYs in dementia: Developing patient- and carer-reported health state classification systems using Rasch analysis. Value in Health, 15(2), 323-333. View this article in WRRO
- Estimating preference-based single index measures for dementia using DEMQOL and DEMQOL-Proxy.. Value Health, 15(2), 346-356.
- Androgen deprivation therapy for prostate cancer prevention: What impact do related adverse events have on quality of life?. Health Outcomes Research in Medicine, 3(3).
- Comparison of health state utility values derived using time trade-off, rank and discrete choice data anchored on the full health-dead scale.. Eur J Health Econ, 13(5), 575-587.
- It's all in the name, or is it? The impact of labeling on health state values.. Med Decis Making, 32(1), 31-40.
- Reducing the Floor Effect in the SF-6D: A Feasibility Study. Applied Research in Quality of Life, 7(2), 193-208.
- Valuing states from multiple measures on the same visual analogue sale: A feasibility study. Health Economics, 21(6), 715-729.
- Deriving a preference-based measure for cancer using the EORTC QLQ-C30.. Value Health, 14(5), 721-731.
- Estimating the SF-6D value set for a population-based sample of Brazilians. Value in Health, 14(5 SUPPL.).
- The impact of adding an extra dimension to a preference-based measure.. Soc Sci Med, 73(2), 245-253.
- Do Portuguese and UK health state values differ across valuation methods?. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 20(4), 609-619.
- Mapping onto Eq-5 D for patients in poor health.. Health Qual Life Outcomes, 8, 141. View this article in WRRO
- PIH32 TREATMENTS TO PREVENT PROSTATE CANCER AND THEIR IMPACT ON HEALTH RELATED QUALITY OF LIFE. Value in Health, 13(7), A380-A381.
- Developing preference-based health measures: using Rasch analysis to generate health state values.. Qual Life Res, 19(6), 907-917.
- A Portuguese Value Set for the SF-6D. VALUE HEALTH, 13(5), 624-630.
- A review of studies mapping (or cross walking) non-preference based measures of health to generic preference-based measures.. Eur J Health Econ, 11(2), 215-225.
- Mapping SF-36 onto the EQ-5D index: how reliable is the relationship?. Health Qual Life Outcomes, 7, 27.
- Ethical principles and economic analysis. Journal of Interdisciplinary Economics, 16(3), 247-269.
- Valuation survey for SF-6Dv2 in Japan based on the international protocol. Quality of Life Research.
- How to embed a choice experiment in an online decision aid or tool: A scoping review (Preprint). Journal of Medical Internet Research.
- Author Correction: Comparability of automated drusen volume measurements in age-related macular degeneration: a MACUSTAR study report. Scientific Reports, 13(1).
- Repeatability and Discriminatory Power of Chart-Based Visual Function Tests in Individuals With Age-Related Macular Degeneration. JAMA Ophthalmology.
Chapters
- Preference-Weighted Health States, Encyclopedia of Quality of Life and Well-Being Research (pp. 5432-5433). Springer International Publishing
- Preference-Based Measures of Health-Related Quality of Life, Encyclopedia of Quality of Life and Well-Being Research (pp. 5429-5432). Springer International Publishing
- Preference-Based Measures of Health-Related Quality of Life, Encyclopedia of Quality of Life and Well-Being Research (pp. 1-3). Springer International Publishing
- Preference-Weighted Health States, Encyclopedia of Quality of Life and Well-Being Research (pp. 5028-5030). Springer Netherlands
- Preference-Based Measures of Health-Related Quality of Life, Encyclopedia of Quality of Life and Well-Being Research (pp. 5026-5028). Springer Netherlands
- Multiattribute Utility Instruments: Condition-Specific Versions, Encyclopedia of Health Economics (pp. 358-365). Elsevier
- Health Utility Measurement (pp. 787-813). Oxford University Press
Conference proceedings papers
- The Hypo-RESOLVE quality of life (QoL) instrument: A study protocol for the development of a new preference-based measure designed to capture the impact of hypoglycaemia on QoL. Quality of Life Research, Vol. 31(Suppl 2) (pp S91-S91). Prague, Czech Republic, 19 October 2022 - 19 October 2022.
- PCR175 Valuation of SF-6D Health States: Is It Feasible and Acceptable in a Lebanese Population. Value in Health, Vol. 25(7) (pp S574-S574)
- PMH29 ESTIMATING A PREFERENCE-BASE INDEX FROM THE RECOVERING QUALITY OF LIFE MEASURE FOR ECONOMIC EVALUATION IN THE AREA OF MENTAL HEALTH: VALUATION OF REQOL-UI. Value in Health, Vol. 22 (pp S685-S686)
- PRM190 - METHODS USED TO VALUE HEALTH RELATED QUALITY IN A SYSTEMATIC REVIEW OF COST-UTILITY ANALYSES IN HEART FAILURE. Value in Health, Vol. 21 (pp S388-S389)
- Cross-Country Comparison Of Cancer-Specific Multi-Attribute Utility Instruments (Mauis): Relative Weighting And Ranking Of Health-Related Quality Of Life (Hrql) Domains In Country-Specific Utility Algorithms. Value in Health, Vol. 21 (pp S2-S3)
- Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research. Health and Quality of Life Outcomes, Vol. 15(S1) View this article in WRRO
- Two New Cancer-Specific Multi-Attribute Utility Instruments: EORTC QLU-C10D and FACT-8D. Value in Health, Vol. 19(7) (pp A807-A807)
- Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Sheffield 2016: advances in patient reported outcomes research. Health and Quality of Life Outcomes, Vol. 14(Suppl 1), 9 June 2016 - 9 June 2016. View this article in WRRO
- View this article in WRRO
- A COMPARISON OF PATIENT AND GENERAL-POPULATION UTILITY VALUES FOR ADVANCED MELANOMA IN HEALTH ECONOMIC MODELLING. VALUE IN HEALTH, Vol. 15(7) (pp A285-A285)
- THE DEVELOPMENT OF AN INTERNATIONALLY-VALID CANCER-SPECIFIC MULTI-ATTRIBUTE UTILITY INSTRUMENT (MAUI) FROM THE EORTC CORE HEALTH-RELATED QUALITY OF LIFE (HRQOL) QUESTIONNAIRE, QLQ-C30. VALUE IN HEALTH, Vol. 15(4) (pp A225-A225)
- ESTIMATING QUALITY OF LIFE IN ADVANCED MELANOMA; A COMPARISON OF STANDARD GAMBLE, SF-36 MAPPED, AND EORTC QLQ-C30 MAPPED UTILITIES. VALUE IN HEALTH, Vol. 14(7) (pp A461-A462)
- THE IMPACT OF CONDITION LABELLING ON HEALTH STATE VALUES. VALUE IN HEALTH, Vol. 14(7) (pp A457-A457)
- MAPPING THE DIABETES HEALTH PROFILE (DHP-18) ONTO THE EQ-5D AND SF-6D GENERIC PREFERENCE BASED MEASURES OF HEALTH. VALUE IN HEALTH, Vol. 14(7) (pp A242-A242)
Reports
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Scholarly editions
Posters
Datasets
- Psychometric data for 'A new quality of life questionnaire for use in Duchenne muscular dystrophy: the DMD-QoL'.
- Supplementary files for 'A new quality of life questionnaire for use in Duchenne muscular dystrophy: the DMD-QoL'.
Other
- Erratum to: Using a discrete choice experiment to value the QLU-C10D: feasibility and sensitivity to presentation format. Quality of Life Research. View this article in WRRO
- Erratum to: QLU-C10D: a health state classification system for a multi-attribute utility measure based on the EORTC QLQ-C30. Quality of Life Research, 25(10), 2683-2683.
- Erratum to: Using a discrete choice experiment to value the QLU-C10D: feasibility and sensitivity to presentation format. Quality of Life Research, 25(9), 2401-2401.
- Erratum to: Reducing the Floor Effect in the SF-6D: A Feasibility Study. Applied Research in Quality of Life, 11(1), 329-329.
- FDA on PROMs: Two important points. BMJ (Online), 341(7776), 746.
Preprints
- How to embed a choice experiment in an online decision aid or tool: a scoping review (Preprint), JMIR Publications Inc..
- Development of the CFQ-R-8D: Estimating Utilities From the Cystic Fibrosis Questionnaire-Revised, Research Square Platform LLC.
- Assessing the comparative feasibility, acceptability and equivalence of videoconference interviews and face-to-face interviews using the time trade-off technique.. Soc Sci Med, 309, 115227.
- Research group
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I am a member of EEPRU, the Department of Health Policy Research Unit in the Economic Methods of Evaluation of Health and Care Interventions. I am also on the editorial board for Medical Decision Making.
PhD students:
- Hannah Hussain
- Haode Wang
- Teaching interests
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My teaching interests lie in health economics, in particular QALYs, utilities and outcome measurement.
I am interested in supervising research students in topics/areas related to measuring and valuing health, in particular deriving, estimating and using utility data for health technology assessment.