Professor Donna Rowen
BA, MSc, PhD (Sheffield)
Population Health, School of Medicine and Population Health
Professor of Health Economics
+44 114 222 0728
Full contact details
Population Health, School of Medicine and Population Health
Regent Court (ScHARR)
30 Regent Street
Sheffield
S1 4DA
- Profile
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I joined HEDS as a health economist in September 2006. Prior to joining HEDS I worked as a teaching assistant in Economics at the University of Sheffield whilst undertaking a PhD in Economics.
- Research interests
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- Measuring and valuing health and quality of life
- Measuring and valuing child health
- Methodology of developing preference-based measures of health from existing measures
- Mapping between measures to generate utility values
I lead and undertake research and consultancy projects in health economics, particularly relating to deriving health state utility values. I have been involved in the development of several condition-specific preference-based measures from existing instruments including cancer, dementia, diabetes, epilepsy, flushing, common mental health problems and myelofibrosis, and provides advice to the NICE Decision Support Unit. I have also undertaken NICE DSU technical support documents for estimating utilities focussing on mapping and alternative measures to EQ-5D. I have also estimated societal values for burden of illness and end of life as part of EEPRU.
Current projects
My current projects include a study assessing the equivalence of preference elicitation interviews undertaken online and face-to-face to inform the UK valuation of EQ-5D-5L. I am also working on the MACUSTAR project, which involves generating a preference-based measure for dry age-related macular degeneration.
- Publications
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Show: Featured publications All publications
Featured publications
Journal articles
- Assessing the comparative feasibility, acceptability and equivalence of videoconference interviews and face-to-face interviews using the time trade-off technique.. Soc Sci Med, 309, 115227.
- A Systematic Review of the Methodologies and Modelling Approaches Used to Generate International EQ-5D-5L Value Sets.. Pharmacoeconomics, 40(9), 863-882.
- Review of Valuation Methods of Preference-Based Measures of Health for Economic Evaluation in Child and Adolescent Populations: Where are We Now and Where are We Going?. Pharmacoeconomics, 38(4), 325-340.
- PROM Validation Using Paper-Based or Online Surveys: Data Collection Methods Affect the Sociodemographic and Health Profile of the Sample.. Value Health, 22(8), 845-850.
- An Updated Systematic Review of Studies Mapping (or Cross-Walking) Measures of Health-Related Quality of Life to Generic Preference-Based Measures to Generate Utility Values.. Appl Health Econ Health Policy, 17(3), 295-313.
- Estimating a Dutch Value Set for the Pediatric Preference-Based CHU9D Using a Discrete Choice Experiment with Duration.. Value Health, 21(10), 1234-1242.
- The Role of Condition-Specific Preference-Based Measures in Health Technology Assessment.. Pharmacoeconomics, 35(Suppl 1), 33-41.
- International Regulations and Recommendations for Utility Data for Health Technology Assessment.. Pharmacoeconomics, 35(Suppl 1), 11-19.
- Eliciting Societal Preferences for Weighting QALYs for Burden of Illness and End of Life.. Med Decis Making, 36(2), 210-222.
- A comparison of methods for converting DCE values onto the full health-dead QALY scale.. Med Decis Making, 35(3), 328-340.
- Mapping to obtain EQ-5D utility values for use in NICE health technology assessments.. Value Health, 16(1), 202-210.
All publications
Journal articles
- The Short Form 6 Dimensions (SF-6D): Development and Evolution. Applied Health Economics and Health Policy, 1-15.
- Development of a novel patient reported outcome measure for health-related quality of life in amyotrophic lateral sclerosis (PROQuALS): study protocol.. Health Qual Life Outcomes, 22(1), 69.
- Who should value children's health and how? An international Delphi study.. Soc Sci Med, 355, 117127.
- Correction to ‘Producing a preference‐based quality of
LIFE measure to quantify the impact ofHYPOGLYCAEMIA on people living with diabetes: A mixed‐methods research protocol’CarltonJ, PowellP, RowenD, BroadleyM, PouwerF, SpeightJ, HellerS, GallMA, RosilioM, ChildCJ, CominsJ, McCrimmonRJ, deGalanB, BrazierJ; Hypo‐RESOLVE CONSORTIUM. Producing a preference‐based quality of LIFE measure to quantify the impact of HYPOGLYCAEMIA on people living with diabetes: a mixed‐methods research protocol. Diabet Med2023 Mar;40(3):e15007. doi: 10.1111/dme.15007.. Diabetic Medicine, 41(8). - Development of a new health-related quality of life measure for people with diabetes who experience hypoglycaemia: the Hypo-RESOLVE QoL.. Diabetologia, 67(8), 1536-1551.
- Evaluation of the measurement properties and validation of the Skindex-16 among patients with acne.. J Am Acad Dermatol, 91(1), 144-146.
- Psychometric performance of the CFQ-R-8D compared to the EQ-5D-3L and SF-6D in people with cystic fibrosis.. J Patient Rep Outcomes, 8(1), 24.
- Assessment of health state utilities associated with adult and pediatric acid sphingomyelinase deficiency (ASMD).. Eur J Health Econ, 25(8), 1437-1448.
- Development and Valuation of a Preference-Weighted Measure in Age-Related Macular Degeneration From the Vision Impairment in Low Luminance Questionnaire: A MACUSTAR Report.. Value Health, 27(5), 642-654.
- Estimating the SF-6Dv1 Value Set for a Population-Based Sample in Lebanon.. Value Health Reg Issues, 42, 100977.
- Exploring the Factors that Drive Clinical Negligence Claims: Stated Preferences of Those Who Have Experienced Unintended Harm.. Patient, 17(3), 301-317.
- The RETRIEVE Checklist for Studies Reporting the Elicitation of Stated Preferences for Child Health-Related Quality of Life.. Pharmacoeconomics, 42(4), 435-446.
- Measuring the overall performance of mental healthcare providers.. Soc Sci Med, 344, 116582.
- Understanding UK public views on normative decisions made to value health-related quality of life in children: A qualitative study.. Soc Sci Med, 340, 116506.
- United States Value Set for the Functional Assessment of Cancer Therapy-General Eight Dimensions (FACT-8D), a Cancer-Specific Preference-Based Quality of Life Instrument.. Pharmacoecon Open, 8(1), 49-63.
- PCR157 Assessment of Health State Utilities for Invasive Pneumococcal Disease, Pneumonia, and Acute Otitis Media in Young Children. Value in Health, 26(12), S478-S479.
- HTA213 Undertaking Studies to Inform Public Policy: Managing Data Collection to Ensure Data Quality in the EQ-5D-5L UK Valuation Through the Use of Independent Quality Control Assessments. Value in Health, 26(12), S361-S361.
- Retest variability and patient reliability indices of quantitative fundus autofluorescence in age-related macular degeneration: a MACUSTAR study report. Scientific Reports, 13(1). View this article in WRRO
- UK Valuation of EQ-5D-5L, a Generic Measure of Health-Related Quality of Life: A Study Protocol.. Value Health, 26(11), 1625-1635.
- Using Age-Specific Values for Pediatric HRQoL in Cost-Effectiveness Analysis: Is There a Problem to Be Solved? If So, How?. Pharmacoeconomics, 41(10), 1165-1174.
- Discrete Choice Experiments in Health State Valuation: A Systematic Review of Progress and New Trends.. Appl Health Econ Health Policy, 21(3), 405-418.
- Randomised comparison of online interviews versus face-to-face interviews to value health states.. Soc Sci Med, 323, 115818.
- Valuing the EQ Health and Wellbeing Short Using Time Trade-Off and a Discrete Choice Experiment: A Feasibility Study.. Value Health, 26(7), 1073-1084.
- Developing an Australian utility value set for MacNew-7D health states.. Qual Life Res, 32(4), 1151-1163.
- Development of the Cystic Fibrosis Questionnaire-Revised-8 Dimensions: Estimating Utilities From the Cystic Fibrosis Questionnaire-Revised.. Value Health, 26(4), 567-578.
- Producing a preference-based quality of LIFE measure to quantify the impact of HYPOGLYCAEMIA on people living with diabetes: A mixed-methods research protocol.. Diabet Med, 40(3), e15007.
- Hypothetical versus experienced health state valuation: a qualitative study of adult general public views and preferences.. Qual Life Res, 32(4), 1187-1197.
- Comparability of automated drusen volume measurements in age-related macular degeneration: a MACUSTAR study report. Scientific Reports, 12. View this article in WRRO
- Convergent validity of EQ-5D with core outcomes in dementia: a systematic review.. Health Qual Life Outcomes, 20(1), 152.
- Assessing the psychometric performance of EQ-5D-5L in dementia: a systematic review.. Health Qual Life Outcomes, 20(1), 139.
- Assessing the comparative feasibility, acceptability and equivalence of videoconference interviews and face-to-face interviews using the time trade-off technique.. Soc Sci Med, 309, 115227.
- A Systematic Review of the Methodologies and Modelling Approaches Used to Generate International EQ-5D-5L Value Sets.. Pharmacoeconomics, 40(9), 863-882.
- Estimation of a Canadian preference-based scoring algorithm for the Veterans RAND 12-Item Health Survey: a population survey using a discrete-choice experiment.. CMAJ Open, 10(3), E589-E598.
- What Matters for Evaluating the Quality of Mental Healthcare? Identifying Important Aspects in Qualitative Focus Groups with Service Users and Frontline Mental Health Professionals.. Patient, 15(6), 669-678.
- Should we consider including a value for ‘hope’ as an additional benefit within HTA?. Value in Health, 25(9), 1619-1623.
- Should We Consider Including a Value for “Hope” as an Additional Benefit Within Health Technology Assessment?. Value in Health, 25(9), 1619-1623.
- A Discrete Choice Experiment to Elicit General Population Preferences Around the Factors Influencing the Choice to Make Clinical Negligence Claims.. Value Health, 25(8), 1404-1415.
- Does Changing the Age of a Child to be Considered in 3-Level Version of EQ-5D-Y Discrete Choice Experiment-Based Valuation Studies Affect Health Preferences?. Value Health, 25(7), 1196-1204.
- Exploring the Issues of Valuing Child and Adolescent Health States Using a Mixed Sample of Adolescents and Adults.. Pharmacoeconomics, 40(5), 479-488.
- Valuing quality in mental healthcare: A discrete choice experiment eliciting preferences from mental healthcare service users, mental healthcare professionals and the general population.. Soc Sci Med, 301, 114885.
- The EQ-HWB: Overview of the Development of a Measure of Health and Wellbeing and Key Results.. Value Health, 25(4), 482-491.
- Adolescent valuation of CARIES-QC-U: a child-centred preference-based measure of dental caries.. Health Qual Life Outcomes, 20(1), 18.
- Measuring What Matters: Little Evidence Supporting the Content Validity of EQ-5D in People with Duchenne Muscular Dystrophy and Their Caregivers.. Med Decis Making, 42(2), 139-140.
- Transforming challenges into opportunities: conducting health preference research during the COVID-19 pandemic and beyond.. Qual Life Res, 31(4), 1191-1198.
- Development of a preference-based heart disease-specific health state classification system using MacNew heart disease-related quality of life instrument.. Qual Life Res, 31(1), 257-268.
- Valuing child and adolescent health: a qualitative study on different perspectives and priorities taken by the adult general public.. Health Qual Life Outcomes, 19(1), 222.
- Vignette-Based Utilities: Usefulness, Limitations, and Methodological Recommendations.. Value Health, 24(6), 812-821.
- Development of a New Quality of Life Measure for Duchenne Muscular Dystrophy Using Mixed Methods: The DMD-QoL.. Neurology, 96(19), e2438-e2450.
- The Functional Assessment of Cancer Therapy Eight Dimension (FACT-8D), a Multi-Attribute Utility Instrument Derived From the Cancer-Specific FACT-General (FACT-G) Quality of Life Questionnaire: Development and Australian Value Set.. Value Health, 24(6), 862-873.
- Deriving a Preference-Based Measure for People With Duchenne Muscular Dystrophy From the DMD-QoL.. Value Health, 24(10), 1499-1510.
- What is the best approach to adopt for identifying the domains for a new measure of health, social care and carer-related quality of life to measure quality-adjusted life years? Application to the development of the EQ-HWB?. Eur J Health Econ, 22(7), 1067-1081.
- Challenges, facilitators and barriers to screening study participants in early disease stages-experience from the MACUSTAR study. BMC Medical Research Methodology, 21. View this article in WRRO
- Discrete choice experiments or best-worst scaling? A qualitative study to determine the suitability of preference elicitation tasks in research with children and young people.. J Patient Rep Outcomes, 5(1), 26.
- A Review of the Psychometric Performance of Selected Child and Adolescent Preference-Based Measures Used to Produce Utilities for Child and Adolescent Health.. Value Health, 24(3), 443-460.
- Estimating a Preference-Based Index for Mental Health From the Recovering Quality of Life Measure: Valuation of Recovering Quality of Life Utility Index.. Value Health, 24(2), 281-290.
- Selection and validation of a classification system for a child-centred preference-based measure of oral health-related quality of life specific to dental caries.. J Patient Rep Outcomes, 4(1), 105.
- Valuing the AD-5D Dementia Utility Instrument: An Estimation of a General Population Tariff.. Pharmacoeconomics, 38(8), 871-881.
- Clinical study protocol for a low-interventional study in intermediate age-related macular degeneration developing novel clinical endpoints for interventional clinical trials with a regulatory and patient access intention—MACUSTAR. Trials, 21(1).
- A Review of the Methods Used to Generate Utility Values in NICE Technology Assessments for Children and Adolescents.. Value Health, 23(7), 907-917.
- Valuing the SF-6Dv2 classification system in the United Kingdom using a discrete-choice experiment with duration. Medical Care, 58(6), 566-573. View this article in WRRO
- Developing a New Version of the SF-6D Health State Classification System From the SF-36v2: SF-6Dv2.. Med Care, 58(6), 557-565.
- Review of Valuation Methods of Preference-Based Measures of Health for Economic Evaluation in Child and Adolescent Populations: Where are We Now and Where are We Going?. Pharmacoeconomics, 38(4), 325-340.
- Assessment of the psychometric properties and refinement of the Health and Self-Management in Diabetes Questionnaire (HASMID).. Health Qual Life Outcomes, 18(1), 59.
- Examining the Feasibility and Acceptability of Valuing the Arabic Version of SF-6D in a Lebanese Population.. Int J Environ Res Public Health, 17(3).
- U.K. utility weights for the EORTC QLU-C10D.. Health Econ, 28(12), 1385-1401.
- PROM Validation Using Paper-Based or Online Surveys: Data Collection Methods Affect the Sociodemographic and Health Profile of the Sample.. Value Health, 22(8), 845-850.
- Valuing health-related quality of life in heart failure: a systematic review of methods to derive quality-adjusted life years (QALYs) in trial-based cost-utility analyses.. Heart Fail Rev, 24(4), 549-563.
- An Updated Systematic Review of Studies Mapping (or Cross-Walking) Measures of Health-Related Quality of Life to Generic Preference-Based Measures to Generate Utility Values.. Appl Health Econ Health Policy, 17(3), 295-313.
- MACUSTAR: Entwicklung und klinische Validierung von funktionellen, strukturellen und patientenberichteten Endpunkten bei intermediärer altersabhängiger Makuladegeneration. Der Ophthalmologe, 116(12), 1186-1193.
- Producing a preference-based quality of life measure for people with Duchenne muscular dystrophy: a mixed-methods study protocol.. BMJ Open, 9(3), e023685.
- Valuation of preference-based measures: can existing preference data be used to select a smaller sample of health states?. Eur J Health Econ, 20(2), 245-255.
- Future Directions in Valuing Benefits for Estimating QALYs: Is Time Up for the EQ-5D?. Value Health, 22(1), 62-68.
- MACUSTAR: Development and Clinical Validation of Functional, Structural, and Patient-Reported Endpoints in Intermediate Age-Related Macular Degeneration.. Ophthalmologica, 241(2), 61-72.
- Estimating a Dutch Value Set for the Pediatric Preference-Based CHU9D Using a Discrete Choice Experiment with Duration.. Value Health, 21(10), 1234-1242.
- Estimating a Preference-Based Single Index Measuring the Quality-of-Life Impact of Self-Management for Diabetes.. Med Decis Making, 38(6), 699-707.
- Developing a dementia-specific preference--based quality of life measure (AD-5D) in Australia: a valuation study protocol.. BMJ Open, 8(1), e018996.
- Using a Discrete-Choice Experiment Involving Cost to Value a Classification System Measuring the Quality-of-Life Impact of Self-Management for Diabetes.. Value Health, 21(1), 69-77.
- Australian Utility Weights for the EORTC QLU-C10D, a Multi-Attribute Utility Instrument Derived from the Cancer-Specific Quality of Life Questionnaire, EORTC QLQ-C30.. Pharmacoeconomics, 36(2), 225-238.
- Experience-based utility and own health state valuation for a health state classification system: why and how to do it.. Eur J Health Econ, 19(6), 881-891.
- Estimating an exchange rate between the EQ-5D-3L and ASCOT.. Eur J Health Econ, 19(5), 653-661.
- Sourcing and Using Appropriate Health State Utility Values in Economic Models in Health Care.. Pharmacoeconomics, 35(Suppl 1), 7-9.
- The Use of Mapping to Estimate Health State Utility Values.. Pharmacoeconomics, 35(Suppl 1), 57-66.
- The Role of Condition-Specific Preference-Based Measures in Health Technology Assessment.. Pharmacoeconomics, 35(Suppl 1), 33-41.
- A Review of Generic Preference-Based Measures for Use in Cost-Effectiveness Models.. Pharmacoeconomics, 35(Suppl 1), 21-31.
- International Regulations and Recommendations for Utility Data for Health Technology Assessment.. Pharmacoeconomics, 35(Suppl 1), 11-19.
- Developing preference-based measures for diabetes: DHP-3D and DHP-5D.. Diabet Med, 34(9), 1264-1275.
- Developing a questionnaire to determine the impact of self-management in diabetes: giving people with diabetes a voice.. Health Qual Life Outcomes, 15(1), 146.
- Comparing Generic and Condition-Specific Preference-Based Measures in Epilepsy: EQ-5D-3L and NEWQOL-6D.. Value Health, 20(4), 687-693.
- Predicting Productivity Losses from Health-Related Quality of Life Using Patient Data.. Appl Health Econ Health Policy, 15(5), 597-614.
- Condition-specific or generic preference-based measures in oncology? A comparison of the EORTC-8D and the EQ-5D-3L.. Qual Life Res, 26(5), 1163-1176.
- Estimating informal care inputs associated with EQ-5D for use in economic evaluation.. Eur J Health Econ, 17(6), 733-744.
- QLU-C10D: a health state classification system for a multi-attribute utility measure based on the EORTC QLQ-C30.. Qual Life Res, 25(3), 625-636.
- Eliciting Societal Preferences for Weighting QALYs for Burden of Illness and End of Life.. Med Decis Making, 36(2), 210-222.
- Comparison of Modes of Administration and Alternative Formats for Eliciting Societal Preferences for Burden of Illness.. Appl Health Econ Health Policy, 14(1), 89-104.
- Using a discrete choice experiment to value the QLU-C10D: feasibility and sensitivity to presentation format.. Qual Life Res, 25(3), 637-649.
- Mapping Functions in Health-Related Quality of Life. Medical Decision Making, 35(7), 912-926.
- Deriving a Preference-Based Measure for Myelofibrosis from the EORTC QLQ-C30 and the MF-SAF.. Value Health, 18(6), 846-855.
- A comparison of methods for converting DCE values onto the full health-dead QALY scale.. Med Decis Making, 35(3), 328-340.
- Testing mapping algorithms of the cancer-specific EORTC QLQ-C30 onto EQ-5D in malignant mesothelioma.. Health Qual Life Outcomes, 13, 6.
- An exploratory study to test the impact on three "bolt-on" items to the EQ-5D.. Value Health, 18(1), 52-60.
- Comparison of general population, patient, and carer utility values for dementia health states.. Med Decis Making, 35(1), 68-80.
- Patient-reported utilities in advanced or metastatic melanoma, including analysis of utilities by time to death. Health and Quality of Life Outcomes, 12(1).
- Deriving a preference-based utility measure for cancer patients from the European Organisation for the Research and Treatment of Cancer's Quality of Life Questionnaire C30: a confirmatory versus exploratory approach.. Patient Relat Outcome Meas, 5, 119-129.
- From KIDSCREEN-10 to CHU9D: creating a unique mapping algorithm for application in economic evaluation.. Health Qual Life Outcomes, 12, 134.
- Preparatory study for the revaluation of the EQ-5D tariff: methodology report.. Health Technol Assess, 18(12), vii-191. View this article in WRRO
- Use of generic and condition-specific measures of health-related quality of life in NICE decision-making: a systematic review, statistical modelling and survey.. Health Technol Assess, 18(9), 1-224. View this article in WRRO
- Valuations of epilepsy-specific health states: a comparison of patients with epilepsy and the general population.. Epilepsy Behav, 36, 12-17.
- Exploring the consistency of the SF-6D.. Value Health, 16(6), 1023-1031.
- Common scale valuations across different preference-based measures: estimation using rank data.. Med Decis Making, 33(6), 839-852.
- Predicting SF-6D from the European Organization for Treatment and Research of Cancer Quality of Life Questionnaire scores in patients with colorectal cancer.. Value Health, 16(2), 373-384.
- Development of DEMQOL-U and DEMQOL-PROXY-U: generation of preference-based indices from DEMQOL and DEMQOL-PROXY for use in economic evaluation.. Health Technol Assess, 17(5), v-140.
- Binary choice health state valuation and mode of administration: head-to-head comparison of online and CAPI.. Value Health, 16(1), 104-113. View this article in WRRO
- Mapping to obtain EQ-5D utility values for use in NICE health technology assessments.. Value Health, 16(1), 202-210.
- Estimating a preference-based index from the Clinical Outcomes in Routine Evaluation-Outcome Measure (CORE-OM): valuation of CORE-6D.. Med Decis Making, 33(3), 381-395.
- Comparison of generic, condition-specific, and mapped health state utility values for multiple myeloma cancer.. Value Health, 15(8), 1059-1068.
- Response to Comments on Mulhern et al., "Improving the Measurement of QALYs in Dementia: Developing Patient- and Carer-Reported Health State Classification Systems Using Rasch Analysis".. Value Health, 15(5), 787-788.
- Developing and testing methods for deriving preference-based measures of health from condition-specific measures (and other patient-based measures of outcome).. Health Technol Assess, 16(32), 1-114.
- Mapping the Functional Assessment of Cancer Therapy-general or -Colorectal to SF-6D in Chinese patients with colorectal neoplasm.. Value Health, 15(3), 495-503.
- The development of a QALY measure for epilepsy: NEWQOL-6D.. Epilepsy Behav, 24(1), 36-43.
- Improving the measurement of QALYs in dementia: Developing patient- and carer-reported health state classification systems using Rasch analysis. Value in Health, 15(2), 323-333. View this article in WRRO
- Estimating preference-based single index measures for dementia using DEMQOL and DEMQOL-Proxy.. Value Health, 15(2), 346-356.
- Androgen deprivation therapy for prostate cancer prevention: What impact do related adverse events have on quality of life?. Health Outcomes Research in Medicine, 3(3).
- Comparison of health state utility values derived using time trade-off, rank and discrete choice data anchored on the full health-dead scale.. Eur J Health Econ, 13(5), 575-587.
- It's all in the name, or is it? The impact of labeling on health state values.. Med Decis Making, 32(1), 31-40.
- Reducing the Floor Effect in the SF-6D: A Feasibility Study. Applied Research in Quality of Life, 7(2), 193-208.
- Valuing states from multiple measures on the same visual analogue sale: A feasibility study. Health Economics, 21(6), 715-729.
- Deriving a preference-based measure for cancer using the EORTC QLQ-C30.. Value Health, 14(5), 721-731.
- Estimating the SF-6D value set for a population-based sample of Brazilians. Value in Health, 14(5 SUPPL.).
- The impact of adding an extra dimension to a preference-based measure.. Soc Sci Med, 73(2), 245-253.
- Do Portuguese and UK health state values differ across valuation methods?. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 20(4), 609-619.
- Mapping onto Eq-5 D for patients in poor health.. Health Qual Life Outcomes, 8, 141. View this article in WRRO
- PIH32 TREATMENTS TO PREVENT PROSTATE CANCER AND THEIR IMPACT ON HEALTH RELATED QUALITY OF LIFE. Value in Health, 13(7), A380-A381.
- Developing preference-based health measures: using Rasch analysis to generate health state values.. Qual Life Res, 19(6), 907-917.
- A Portuguese Value Set for the SF-6D. VALUE HEALTH, 13(5), 624-630.
- A review of studies mapping (or cross walking) non-preference based measures of health to generic preference-based measures.. Eur J Health Econ, 11(2), 215-225.
- Mapping SF-36 onto the EQ-5D index: how reliable is the relationship?. Health Qual Life Outcomes, 7, 27.
- Ethical principles and economic analysis. Journal of Interdisciplinary Economics, 16(3), 247-269.
- Valuation survey for SF-6Dv2 in Japan based on the international protocol. Quality of Life Research.
- Health State Utilities Associated with Invasive Pneumococcal Disease, Pneumonia, and Recurrent Acute Otitis Media in Young Children. Quality of Life Research.
- Deriving a Preference-Weighted Measure for People with Hypoglycaemia from the Hypo-RESOLVE-QoL. Value in Health.
- Author Correction: Comparability of automated drusen volume measurements in age-related macular degeneration: a MACUSTAR study report. Scientific Reports, 13(1).
- Repeatability and Discriminatory Power of Chart-Based Visual Function Tests in Individuals With Age-Related Macular Degeneration. JAMA Ophthalmology.
- Disease-specific assessment of Vision Impairment in Low Luminance (VILL) in age-related macular degeneration – a MACUSTAR study report. British Journal of Ophthalmology.
Chapters
- Preference-Weighted Health States, Encyclopedia of Quality of Life and Well-Being Research (pp. 5432-5433). Springer International Publishing
- Preference-Based Measures of Health-Related Quality of Life, Encyclopedia of Quality of Life and Well-Being Research (pp. 5429-5432). Springer International Publishing
- Preference-Weighted Health States In Maggino F (Ed.), Encyclopedia of Quality of Life and Well-Being Research
- Preference-Based Measures of Health-Related Quality of Life, Encyclopedia of Quality of Life and Well-Being Research (pp. 1-3). Springer International Publishing
- Preference-Weighted Health States, Encyclopedia of Quality of Life and Well-Being Research (pp. 5028-5030). Springer Netherlands
- Preference-Based Measures of Health-Related Quality of Life, Encyclopedia of Quality of Life and Well-Being Research (pp. 5026-5028). Springer Netherlands
- Multiattribute Utility Instruments: Condition-Specific Versions, Encyclopedia of Health Economics (pp. 358-365). Elsevier
- Methods for developing preference-based measures of health, The Elgar Companion to Health Economics: Second Edition (pp. 395-405).
- Health Utility Measurement (pp. 787-813). Oxford University Press
Conference proceedings papers
- Vision Impairment in Low Luminance Reports and Progression of Intermediate Age-Related Macular Degeneration in the MACUSTAR Study Cohort. INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, Vol. 65(7)
- Who Should Value Health-Related Quality of Life in Children? Results from a Dual Country Survey. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S45-S45)
- Patient-relevance of visual function decline in intermediate age-related macular degeneration a MACUSTAR study report. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S75-S75)
- Eliciting preferences of people living with diabetes using the Hypo-RESOLVE-QoL-8D to determine the impact of hypoglycaemia to inform economic evaluation. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S95-S95)
- Assessing the psychometric performance of a new condition-specific preference-weighted measure, VILL-UI, and EQ-5D-5L in patients with age-related macular degeneration: A MACUSTAR Study Report. QUALITY OF LIFE RESEARCH, Vol. 33 (pp S213-S213)
- Convergent validity of EQ-5D with core outcomes in dementia: a systematic review. QUALITY OF LIFE RESEARCH, Vol. 32(SUPPL 1) (pp S10-S10)
- The Hypo-RESOLVE QoL: a new patient reported outcome (PRO) to quantify the impact of hypoglycaemia on health-related quality of life. DIABETOLOGIA, Vol. 66(SUPPL 1) (pp S427-S427)
- UNDERTAKING STUDIES TO INFORM PUBLIC POLICY: MANAGING DATA COLLECTION TO ENSURE DATA QUALITY IN THE EQ-5D-5L UK VALUATION THROUGH THE USE OF INDEPENDENT QUALITY CONTROL ASSESSMENTS. VALUE IN HEALTH, Vol. 26(12) (pp S361-S361)
- SELECTING PREFERENCE-BASED MEASURES (PBMS) FOR PEDIATRIC STUDIES: A PROPOSED DECISION MAKING FRAMEWORK. VALUE IN HEALTH, Vol. 26(12) (pp S475-S475)
- Health state utilities in children with peanut allergy and their parents: A UK vignette study. ALLERGY, Vol. 78
- ASSESSMENT OF HEALTH STATE UTILITIES FOR INVASIVE PNEUMOCOCCAL DISEASE, PNEUMONIA, AND ACUTE OTITIS MEDIA IN YOUNG CHILDREN. VALUE IN HEALTH, Vol. 26(12) (pp S478-S479)
- The Hypo-RESOLVE quality of life (QoL) instrument: A study protocol for the development of a new preference-based measure designed to capture the impact of hypoglycaemia on QoL. Quality of Life Research, Vol. 31(Suppl 2) (pp S91-S91). Prague, Czech Republic, 19 October 2022 - 19 October 2022.
- PCR175 Valuation of SF-6D Health States: Is It Feasible and Acceptable in a Lebanese Population. Value in Health, Vol. 25(7) (pp S574-S574)
- VALUATION OF SF-6D HEALTH STATES: IS IT FEASIBLE AND ACCEPTABLE IN A LEBANESE POPULATION. VALUE IN HEALTH, Vol. 25(7) (pp S574-S574)
- Valuing health-related quality of life in children and adolescents: Who should we ask and how? A study protocol for consulting the public and experts in health valuation. QUALITY OF LIFE RESEARCH, Vol. 31 (pp S146-S146)
- VALUATION OF THE EQ HEALTH AND WELL-BEING SHORT USING TIME TRADE-OFF AND DISCRETE CHOICE EXPERIMENTS: A FEASIBILITY STUDY. VALUE IN HEALTH, Vol. 25(12) (pp S413-S413)
- Exploring the face and content validity of a new patient-reported outcome measure of the impact of hypoglycaemia on quality of life: Results of the Hypo-RESOLVE QoL cognitive interview study. QUALITY OF LIFE RESEARCH, Vol. 31 (pp S59-S59)
- DEVELOPMENT OF A CHECKLIST FOR STUDIES REPORTING THE ELICITATION OF STATED PREFERENCES VALUES FOR CHILD HEALTH RELATED QUALITY OF LIFE. VALUE IN HEALTH, Vol. 25(12) (pp S363-S363)
- Deriving a preference based measure for age-related macular degeneration from the VILL-33: A MACUSTAR Study Report. QUALITY OF LIFE RESEARCH, Vol. 31 (pp S76-S76)
- COMPARING NON-ONCOLOGICAL RARE CONDITION SUBMISSIONS TO THE NATIONAL INSTITUTE FOR HEALTH AND CARE EXCELLENCE (NICE) VERSUS SCOTTISH MEDICINES CONSORTIUM (SMC) FROM 2001 TO 2021. VALUE IN HEALTH, Vol. 25(12) (pp S326-S327)
- ANALYSIS OF NEUROLOGICAL CONDITIONS SUBMISSIONS TO THE NATIONAL INSTITUTE FOR HEALTH AND CARE EXCELLENCE (NICE) AND THE SCOTTISH MEDICINES CONSORTIUM (SMC) FROM 2001 TO 2021. VALUE IN HEALTH, Vol. 25(12) (pp S314-S314)
- ACCESSIBILITY AND INCLUSIVITY FOR PEOPLE PARTICIPATING IN HEALTH PREFERENCE RESEARCH: HOW DOES THE MODE OF ADMINISTERING AN INTERVIEW IMPACT ON TIME TRADE-OFF STUDIES?. VALUE IN HEALTH, Vol. 25(12) (pp S322-S323)
- Psychometric properties of the Vision Impairment in Low Luminance (VILL) questionnaire in age-related macular degeneration in the MACUSTAR study. INVESTIGATIVE OPHTHALMOLOGY & VISUAL SCIENCE, Vol. 62(8)
- DEVELOPMENT OF A PREFERENCE BASED SINGLE INDEX FOR THE VR-12 IN CANADA. MEDICAL DECISION MAKING, Vol. 40(1) (pp E53-E54)
- PMH29 ESTIMATING A PREFERENCE-BASE INDEX FROM THE RECOVERING QUALITY OF LIFE MEASURE FOR ECONOMIC EVALUATION IN THE AREA OF MENTAL HEALTH: VALUATION OF REQOL-UI. Value in Health, Vol. 22 (pp S685-S686)
- DEVELOPMENT OF THE CYSTIC FIBROSIS QUESTIONNAIRE-REVISED PREFERENCE BASED SCORING ALGORITHM. PEDIATRIC PULMONOLOGY, Vol. 54 (pp S443-S443)
- UK utility weights for the cancer-specific EORTC QLU-C10D: Why, how and when to use?. QUALITY OF LIFE RESEARCH, Vol. 28 (pp S11-S12)
- Are child and adolescent-specific measures used to inform resource allocation decisions? A review of the methods used to generate utility values in NICE technology appraisals for children and adolescents. QUALITY OF LIFE RESEARCH, Vol. 28 (pp S110-S110)
- Using item response theory to construct a health classification system and select health states for valuation for the Preference-Based Index from the Recovering Quality of Life (ReQoL) outcome measure. QUALITY OF LIFE RESEARCH, Vol. 28 (pp S68-S68)
- PRM190 - METHODS USED TO VALUE HEALTH RELATED QUALITY IN A SYSTEMATIC REVIEW OF COST-UTILITY ANALYSES IN HEART FAILURE. Value in Health, Vol. 21 (pp S388-S389)
- The new health and self-management in diabetes (HASMID-10) measure: assessing psychometric performance in a large longitudinal survey. QUALITY OF LIFE RESEARCH, Vol. 27 (pp S39-S39)
- Use of preferences to inform healthcare resource allocation. QUALITY OF LIFE RESEARCH, Vol. 27 (pp S14-S14)
- Cross-Country Comparison Of Cancer-Specific Multi-Attribute Utility Instruments (Mauis): Relative Weighting And Ranking Of Health-Related Quality Of Life (Hrql) Domains In Country-Specific Utility Algorithms. Value in Health, Vol. 21 (pp S2-S3)
- Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Oxford 2017: Advances in Patient Reported Outcomes Research. Health and Quality of Life Outcomes, Vol. 15(S1) View this article in WRRO
- The importance of validation and refinement in PROM development: using the HASMID questionnaire, a measure of self-management in diabetes. QUALITY OF LIFE RESEARCH, Vol. 26(1) (pp 124-124)
- Development of United Kingdom value set for EORTC QLU-C10D: multi-attribute utility classification for the EORTC-QLQ-C30. QUALITY OF LIFE RESEARCH, Vol. 26(1) (pp 50-50)
- Changing HbA(1c) units: a hindarance, not a help to patients. DIABETOLOGIA, Vol. 60 (pp S342-S342)
- Two New Cancer-Specific Multi-Attribute Utility Instruments: EORTC QLU-C10D and FACT-8D. Value in Health, Vol. 19(7) (pp A807-A807)
- Proceedings of Patient Reported Outcome Measure’s (PROMs) Conference Sheffield 2016: advances in patient reported outcomes research. Health and Quality of Life Outcomes, Vol. 14(Suppl 1), 9 June 2016 - 9 June 2016. View this article in WRRO
- View this article in WRRO Developing a PROM to evaluate self-management in diabetes (HASMID): giving patients a voice. HEALTH AND QUALITY OF LIFE OUTCOMES, Vol. 14
- Valuing the impact of self-management on quality of life in diabetes using discrete choice experiments. QUALITY OF LIFE RESEARCH, Vol. 25 (pp 134-134)
- DO CANCER PATIENTS DISTINGUISH BETWEEN THE IMPORTANCE AND SEVERITY OF THEIR QUALITY OF LIFE CONCERNS?. ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, Vol. 10 (pp 31-31)
- THE DEVELOPMENT OF CANCER-SPECIFIC MULTI-ATTRIBUTE UTILITY INSTRUMENTS FROM THE EORTC QLQ-C30 AND FACT-G. ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, Vol. 10 (pp 31-31)
- Do cancer patients distinguish between the importance and severity of their quality of life concerns?. QUALITY OF LIFE RESEARCH, Vol. 23 (pp 122-122)
- Comparison of an online survey and face-to-face interviews for eliciting societal preferences. QUALITY OF LIFE RESEARCH, Vol. 23 (pp 49-49)
- A COMPARISON OF PATIENT AND GENERAL-POPULATION UTILITY VALUES FOR ADVANCED MELANOMA IN HEALTH ECONOMIC MODELLING. VALUE IN HEALTH, Vol. 15(7) (pp A285-A285)
- THE DEVELOPMENT OF AN INTERNATIONALLY-VALID CANCER-SPECIFIC MULTI-ATTRIBUTE UTILITY INSTRUMENT (MAUI) FROM THE EORTC CORE HEALTH-RELATED QUALITY OF LIFE (HRQOL) QUESTIONNAIRE, QLQ-C30. ASIA-PACIFIC JOURNAL OF CLINICAL ONCOLOGY, Vol. 8 (pp 335-335)
- Appropriate mapping functions in HRQL: a series of models mapping from FACT-G to EQ-5D. QUALITY OF LIFE RESEARCH, Vol. 21 (pp 11-11)
- Valuing a vision 'bolt-on' item for the EQ-5D. QUALITY OF LIFE RESEARCH, Vol. 21 (pp 53-54)
- Predicting SF-6D preference-based score based on the European Organization for Treatment and Research of Cancer Quality of Life Questionnaire in colorectal cancer. QUALITY OF LIFE RESEARCH, Vol. 21 (pp 84-84)
- How do respondents perceive health state valuation tasks? A 'think aloud' study investigating time trade off and discrete choice experiments. QUALITY OF LIFE RESEARCH, Vol. 21 (pp 53-53)
- A COMPARISON OF GENERAL POPULATION AND PATIENT UTILITY VALUES FOR ADVANCED MELANOMA. ANNALS OF ONCOLOGY, Vol. 23 (pp 372-372)
- THE DEVELOPMENT OF AN INTERNATIONALLY-VALID CANCER-SPECIFIC MULTI-ATTRIBUTE UTILITY INSTRUMENT (MAUI) FROM THE EORTC CORE HEALTH-RELATED QUALITY OF LIFE (HRQOL) QUESTIONNAIRE, QLQ-C30. VALUE IN HEALTH, Vol. 15(4) (pp A225-A225)
- The impact of adding a generic dimension to a condition-specific preference-based measure. QUALITY OF LIFE RESEARCH, Vol. 20 (pp 10-10)
- Mapping the Functional Assessment of Cancer Therapy-General or -Colorectal to Preference-based Values Measured by SF-6D in Patients with Colorectal Neoplasm. QUALITY OF LIFE RESEARCH, Vol. 20 (pp 26-26)
- Adaptation of a method for developing a preference-based measure from a descriptive health-related quality of life measure (HRQOL): a confirmatory versus exploratory approach for the cancer-specific QLQ-C30. QUALITY OF LIFE RESEARCH, Vol. 20 (pp 31-31)
- The impact of condition labelling on health state utility values. QUALITY OF LIFE RESEARCH, Vol. 20 (pp 11-11)
- ESTIMATING QUALITY OF LIFE IN ADVANCED MELANOMA; A COMPARISON OF STANDARD GAMBLE, SF-36 MAPPED, AND EORTC QLQ-C30 MAPPED UTILITIES. VALUE IN HEALTH, Vol. 14(7) (pp A461-A462)
- THE IMPACT OF CONDITION LABELLING ON HEALTH STATE VALUES. VALUE IN HEALTH, Vol. 14(7) (pp A457-A457)
- MAPPING THE DIABETES HEALTH PROFILE (DHP-18) ONTO THE EQ-5D AND SF-6D GENERIC PREFERENCE BASED MEASURES OF HEALTH. VALUE IN HEALTH, Vol. 14(7) (pp A242-A242)
- ESTIMATING THE SF-6D VALUE SET FOR A POPULATION BASED SAMPLE OF BRAZILIANS. VALUE HEALTH, Vol. 13(7) (pp A240-A240)
- What do people with dementia and their proxies say about HRQL? A quantitative test of qualitative findings. QUALITY OF LIFE RESEARCH, Vol. 19 (pp 14-14)
- Using the Liverpool Quality of Life battery to develop a health state classification system for Epilepsy. QUALITY OF LIFE RESEARCH, Vol. 19 (pp 57-57)
- Developing a health state classification system for dementia using Rasch analysis. QUALITY OF LIFE RESEARCH, Vol. 19 (pp 35-36)
Reports
- The RETRIEVE checklist for studies reporting the elicitation of stated preferences for child health related quality of life
- Health related quality of life in economic evaluations in dementia: state of play and reflections
- A literature review of methods to measure and value benefits in cost-effectiveness analyses of interventions for patients with either a short life expectancy or receiving palliative care’
- Valuing child health: Exploring the use of a mixed sample of adolescents and adults to value child and adolescent health states
- View this article in WRRO Mapping the Health of Nation Outcomes Scale (HoNOS) onto the Recovering Quality of Life Utility Index (ReQoL-UI)
- View this article in WRRO Selection and validation of a classification system for a child-centred caries-specific utility measure
- View this article in WRRO Estimating a Preference-Based Index for mental health from the Recovering Quality of Life (ReQoL) measure: Valuation of ReQoL-UI
- Measuring and valuing health-related quality of life when sufficient EQ-5D data is not available
- A review of the psychometric performance of paediatric preference-based measures used to generate utility values for children
- A review of the methods used to generate utility values in NICE technology appraisals for paediatrics
- View this article in WRRO An empirical comparison of well-being measures used in the UK
- View this article in WRRO A conceptual comparison of well-being measures used in the UK.
- NICE DSU Technical Support Document 11: Alternatives to EQ-5D for generating health state utility values
- NICE DSU Technical Support Document 10: The use of mapping methods to estimate health state utility values
Scholarly editions
- Developing a health state classification system from NEWQOL for epilepsy using classical psychometric techniques and Rasch analysis: a technical report.
- Using rank and discrete choice data to estimate health state utility values on the QALY scale.
- The simultaneous valuation of states from multiple instruments using ranking and VAS data: methods and preliminary results.
- Incorporating Ethics into Economics: Problems and Possibilities.
- Attitudes and motivations of Economics students: Some recent evidence..
- Are people ethical? An experimental approach.
Posters
- E-QALY: valuing the items for a new generic preference-based measure using time trade-off and discrete choice experiments.
- The impact of conditions labels on health state values.
- Estimating a Preference-Based Index from the Recovering Quality of Life measure for economic evaluation in the area of mental health: Valuation of ReQoL-UI.
- Examining productivity losses associated with health related quality of life using patient data (2014).
- Estimating a Dutch value set for the paediatric preference-based CHU-9D using a discrete choice experiment with duration.
Datasets
- Psychometric data for 'A new quality of life questionnaire for use in Duchenne muscular dystrophy: the DMD-QoL'.
- Supplementary files for 'A new quality of life questionnaire for use in Duchenne muscular dystrophy: the DMD-QoL'.
Other
- Erratum to: Using a discrete choice experiment to value the QLU-C10D: feasibility and sensitivity to presentation format. Quality of Life Research. View this article in WRRO
- Erratum to: QLU-C10D: a health state classification system for a multi-attribute utility measure based on the EORTC QLQ-C30. Quality of Life Research, 25(10), 2683-2683.
- Erratum to: Using a discrete choice experiment to value the QLU-C10D: feasibility and sensitivity to presentation format. Quality of Life Research, 25(9), 2401-2401.
- Erratum to: Reducing the Floor Effect in the SF-6D: A Feasibility Study. Applied Research in Quality of Life, 11(1), 329-329.
- FDA on PROMs: Two important points. BMJ (Online), 341(7776), 746.
Preprints
- How to embed a choice experiment in an online decision aid or tool: a scoping review (Preprint), JMIR Publications Inc..
- Development of the CFQ-R-8D: Estimating Utilities From the Cystic Fibrosis Questionnaire-Revised, Research Square Platform LLC.
- Research group
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I am a member of EEPRU, the Department of Health Policy Research Unit in the Economic Methods of Evaluation of Health and Care Interventions. I am also on the editorial board for Medical Decision Making.
PhD students:
- Hannah Hussain
- Haode Wang
- Teaching interests
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My teaching interests lie in health economics, in particular QALYs, utilities and outcome measurement.
I am interested in supervising research students in topics/areas related to measuring and valuing health, in particular deriving, estimating and using utility data for health technology assessment.