Dr Emily Mayberry

Journal articles

• Girling C, Ryan G, Bradburn M, Caprioli T, Dawson S, Fisher E, Haynes N, Herbert E, Hill H, Hind D , May C et al (2026) Delivering effective non-invasive ventilation in amyotrophic lateral sclerosis using intensive remote support (DENIM): protocol for an embedded process evaluation in a hybrid type 3 implementation-effectiveness trial. Implementation Science Communications. View this article in WRRO
• Chan Y, Creer S, Mere J, Griffiths AW, Wright C, Hobson EV, McDermott CJ & Mayberry EJ (2026) The emotional experiences of healthcare professionals working in amyotrophic lateral sclerosis: a systematic review. Muscle & Nerve, 74(3), 517-529. View this article in WRRO
• Ing L, Griffiths AW, Mayberry E, Ali Y, Blackburn D & McDermott C (2026) Patient and caregiver attitudes to cognitive and behavioral testing in Amyotrophic Lateral Sclerosis. Neurodegenerative Disease Management. View this article in WRRO
• Costello E, De Vocht J, Beswick E, Mac Domhnaill É, Peelo C, Foucher J, Mayberry EJ, Chiwera T, Hiemstra F, Caravaca Puchades A , Iazzolino B et al (2025) Neuropsychological assessment practices in PRECISION-ALS: challenges and opportunities for harmonization. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 26(7-8), 748-757. View this article in WRRO
• Rawlinson C, Gould RL, McDermott CJ, Thompson B, Weeks K, Gossage-Worrall R, Serfaty MA, Graham CD, McCracken L, White D , Howard RJ et al (2024) Experiences of acceptance and commitment therapy for people living with motor neuron disease (MND): a qualitative study from the perspective of people living with MND and therapists. The Cognitive Behaviour Therapist, 17. View this article in WRRO
• McDool E, Carlton J, Powell PA, Coates E, Knox L, Mayberry E, Appleby N, Griffiths AW, Hobson E & McDermott CJ (2024) Measuring health-related quality of life in amyotrophic lateral sclerosis. Neurology, 103(2). View this article in WRRO
• Gould RL, McDermott CJ, Thompson BJ, Rawlinson CV, Bursnall M, Bradburn M, Kumar P, Turton EJ, White DA, Serfaty MA , Graham CD et al (2024) Acceptance and Commitment Therapy plus usual care for improving quality of life in people with motor neuron disease (COMMEND): a multicentre, parallel, randomised controlled trial in the UK. The Lancet, 403(10442), 2381-2394. View this article in WRRO
• Gray D, Lesley R, Mayberry EJ, Williams L, McHutchison C, Newton J, Pal S, Chandran S, MacPherson SE & Abrahams S (2024) Development, reliability, validity, and acceptability of the remote administration of the Edinburgh Cognitive and Behavioural ALS Screen (ECAS). Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 25(1-2), 96-103.
• Gould RL, Rawlinson C, Thompson B, Weeks K, Gossage-Worrall R, Cantrill H, Serfaty MA, Graham CD, McCracken LM, White D , Howard RJ et al (2023) Acceptance and commitment therapy for people living with motor neuron disease: an uncontrolled feasibility study. Pilot and Feasibility Studies, 9. View this article in WRRO
• Conroy É, Kennedy P, Heverin M, Leroi I, Mayberry E, Beelen A, Stavroulakis T, van den Berg LH, McDermott CJ, Hardiman O & Galvin M (2021) Informal caregivers in amyotrophic lateral sclerosis : a multi-centre, exploratory study of burden and difficulties. Brain Sciences, 11(8). View this article in WRRO
• Zarotti N, Mayberry E, Ovaska-Stafford N, Eccles F & Simpson J (2021) Psychological interventions for people with motor neuron disease: a scoping review. Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 22(1-2), 1-11.
• Levita L, Mayberry E, Mehmood A & Reuber M (2020) Evaluation of LiNES : a new measure of trauma, negative affect, and relationship insecurity over the life span in persons with FND. The Journal of Neuropsychiatry and Clinical Neurosciences, 32(1), 43-49. View this article in WRRO
• Creer S, Griffiths AW, Hobson E, Davies S, Massey C, Stokes L, Waters-Harvey B, Bamber R, Hastings S, Bedford J , Gould RL et al () “What about me? I’m supposed to be … superhuman?”: exploring staff perspectives on how to deliver high quality psychological care for people living with amyotrophic lateral sclerosis. Neurodegenerative Disease Management, 1-12.