Family experiences
These resources have been developed from our research about family experiences of mesothelioma.
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- Resources to download
- Ten Top Tips - for communicating a mesothelioma diagnosis.
- Consensus statement - outlining a list of eleven research priorities for mesothelioma patient and carer experience research.
- Videos
- Mesothelioma and the coroner - a short animation about coroner involvement after a death from mesothelioma.
- Patient and Public Involvement Panel - PPI Panel members speak about the benefits of being involved in our Patient and Public Involvement Panel. We host this Panel to ensure our research is in line with the needs and priorities of patients and their family members.
- Invisible Threads - a powerful play telling the stories of families affected by mesothelioma.
- Reports
- Mesothelioma and the Coroner project report - the final report for our study which investigated bereaved family or close friends' experiences of the inquest process when a person has died from mesothelioma.