Our research

Core objectives

• Conduct robust and rigorous research with a reputation for excellence nationally and internationally that is of benefit to the care of people diagnosed with mesothelioma and their families,
• Produce research outputs from the outset that demonstrate the success of the Research Centre and facilitate application of findings.
• Ensure the research is disseminated rigorously to enable practice, patients and healthcare professionals remain informed and receive maximum benefit from any evidence generated between Mesothelioma UK and the Mesothelioma UK Research Centre.
• Develop and maintain the infrastructure and systems necessary to ensure the good governance and efficient running of the Research Centre.
• Develop research capacity to inform mesothelioma policy and practice and develop opportunities for future academic and clinical academic workforce related to mesothelioma.
• Generate a clear pathway to impact that improves patient experience.

Current Research

Details of our current research projects can be found here

Previous Research

Details of our previous research projects can be found here

Publications

2024

Taylor, B., Allmark, P., & Tod, A. (2024). Mesothelioma caused by asbestos in UK public buildings: an ongoing risk to public health. People, Place and Policy, Early View, pp. 1-10. DOI: 10.3351/ppp.2024.7668957929

Ejegi-Memeh S, Sherborne V, Mayland C, Tod A, Taylor B: Mental health and wellbeing in mesothelioma: A qualitative study exploring what helps the wellbeing of those living with this illness and their informal carers. European Journal of Oncology Nursing. Available online 24 March 2024. https://doi.org/10.1016/j.ejon.2024.102572

Sherborne V, Wood E, Mayland C, Gardiner C, Lusted C, Bibby A, Tod A, Taylor B, Ejegi-Memeh S. The mental health and well-being implications of a mesothelioma diagnosis: A mixed methods study.  European Journal of Oncology Nursing. Available online 15 March 2024. https://eprints.whiterose.ac.uk/210568/

Mitchell, S., Turner, N., Fryer, K. Beng J, Ogden ME, Watson M, Gardiner C, Bayly J, Sleeman KE, Evans CJ. A framework for more equitable, diverse, and inclusive Patient and Public Involvement for palliative care research. Res Involv Engagem 10, 19 (2024). https://doi.org/10.1186/s40900-023-00525-3

2023

Sherborne V, Tod A, Taylor B, 2023. Mesothelioma: exploring psychological effects on veterans and their family caregivers . Cancer Nursing Practice. DOI: 10.7748/cnp.2023.e1831

Hargreaves, S., Gardiner, C., Tod, A. and Darlison, L., 2023. Mesothelioma palliative care needs: supporting patients and families with new research-based resources. British Journal of Community Nursing, 28(5), pp.248-252.

Taylor, B., Tod, A., Allmark, P. (2023). The hidden danger of asbestos in UK schools: 'I don't think they realise how much risk it poses to students'. The Conversation. The hidden danger of asbestos in UK schools: 'I don't think they realise how much risk it poses to students' (theconversation.com)

Taylor B, Tod A, Gardiner C, Ejegi-Memeh S, Harrison M, Sherborne V, Couchman E, Senek M, Bachas Brook H, Ross J, Zhang X. (2023) Mesothelioma patient and carer experience research: A research prioritisation exercise. European Journal of Oncology Nursing, 63, 102281. DOI: 10.1016/j.ejon.2023.102281

2022

Gardiner C, Harrison M, Hargreaves S & Taylor B (2022) Palliative care roles and responsibilities of mesothelioma clinical nurse specialists in the UK, Progress in Palliative Care. DOI: 10.1080/09699260.2022.2158286

Hargreaves S, Gardiner G, Couchman E, Caring for mesothelioma patients and their families in primary care: new tools to enable early-stage engagement with palliative care. BJGP Life. 9 December 2022

Couchman E, Fragmented. BJGP Life. 18 November 2022

Taylor B, Allmark P, Tod A (2022) The Experiences of Presentation, Diagnosis, Treatment and Care for School-Based Education Workers with Mesothelioma: A Scoping Review. Int J Nurs Health Care Res 5: 1342. DOI: 10.29011/2688-9501.101342

Hargreaves S, Clayton K, Creech L et al., Impact of Covid-19 on lung cancer and Mesothelioma specialist nurses: A survey of experiences and perceptions. European Journal of Oncology Nursing 2022 DOI:https://doi.org/10.1016/j.ejon.2022.102207

Johnson M, Allmark P, Tod A. Living beyond expectations: a qualitative study into the experience of long-term survivors with pleural mesothelioma and their carers. BMJ Open Respiratory Research 2022;9:e001252. doi: 10.1136/bmjresp-2022-001252

Sherborne S., Tod A. & Taylor B. (2022). The Psychological Effects of Mesothelioma in the UK Military Context From the Carer’s Perspective: A Qualitative Study. Illness, Crisis & Loss 2022

Gardiner C., Harrison M., Hargreaves S. & Taylor B. (2022). Clinical nurse specialist role in providing generalist and specialist palliative care: A qualitative study of mesothelioma clinical nurse specialists. Journal of Advanced Nursing, 00, 1– 10. https://doi.org/10.1111/jan.15277

Couchman E, Gardiner C, Ejegi-Memeh S, Mitchell S. Facilitators of and barriers to continuity with GPs in primary palliative cancer care: A mixed-methods systematic review. Progress in Palliative Care 2022

Ejegi-Memeh S, Taylor B, Gardiner C. Tod A. Patients' and informal carers' experience of living with mesothelioma: A systematic rapid review and synthesis of the literature. European Journal of Oncology Nursing. 2022 DOI: 10.1016/j.ejon.2022.102122

Harrison M, Darlison L, Gardiner C. Understanding the Experiences of end of Life Care for Patients with Mesothelioma from the Perspective of Bereaved Family Caregivers in the UK: A Qualitative Analysis. Journal of Palliative Care. February 2022. doi:10.1177/08258597221079235

Senek M, Robertson S, Darlison L, Creech L & Tod A (2022) Malignant pleural mesothelioma patients' experience by gender : findings from a cross-sectional UK-national questionnaire. BMJ Open Respiratory Research, 9(1).

2021

Gardiner C, Bolton L. Role and support needs of nurses in delivering palliative and end of life care. Nursing Standard. 2021 doi: 10.7748/ns.2021.e11789

Ejegi-Memeh S, Robertson S, Taylor B, Tod A. Gender and the experiences of living with mesothelioma: A thematic analysis. European Journal of Oncology Nursing. Vol 52, June 2021. https://doi.org/10.1016/j.ejon.2021.101966

Harrison M, Gardiner C, Taylor B, Ejegi-Memeh S, Darlison L. Understanding the palliative care needs and experiences of people with mesothelioma and their family carers: An integrative systematic review. Palliative Medicine. April 2021. doi:10.1177/02692163211007379

Taylor B, Tod A, Gardiner C, Darlison L, Creech L. The impact of the covid-19 pandemic on people with mesothelioma and their informal carers in the UK. Cancer Nursing Practice. 2021 doi: 10.7748/cnp.2021.e1773

Ejegi-Memeh S, Darlison L, Moylan A, Tod A, Sherborne V, Warnock C, Taylor B. Living with mesothelioma: A qualitative study of the experiences of male military veterans in the UK. European Journal of Oncology Nursing. Volume 50, February 2021 https://doi.org/10.1016/j.ejon.2020.101889

2020

Allmark A, Tod A, Darlison L (2020) Mesothelioma: are nurses being put at risk in the workplace? Nursing Standard 35(12):14-16 https://rcni.com/nursing-standard/features/mesothelioma-are-nurses-being-put-risk-workplace-168506

Senek M, Robertson S, Tod A et al. Mesothelioma: exploring gender differences in time to diagnosis, seeking legal advice and occupational risk. Cancer Nursing Practice. 2020 doi: 10.7748/cnp.2020.e1745

Sherborne, V, Seymour, J, Taylor, B, Tod, A. What are the psychological effects of mesothelioma on patients and their carers? A scoping review. Psycho‐Oncology. 2020; 29: 1464– 1473. https://doi.org/10.1002/pon.5454

2019

Matthews C, Freeman C, Sharples LD on behalf of the MesoTRAP investigators, et al. MesoTRAP: a feasibility study that includes a pilot clinical trial comparing video-assisted thoracoscopic partial pleurectomy decortication with indwelling pleural catheter in patients with trapped lung due to malignant pleural mesothelioma designed to address recruitment and randomisation uncertainties and sample size requirements for a phase III trial. BMJ Open Respiratory Research 2019;6:e000368. http://dx.doi.org/10.1136/bmjresp-2018-000368

Warnock, C., Lord, K., Taylor, B. et al. Patient experiences of participation in a radical thoracic surgical trial: findings from the Mesothelioma and Radical Surgery Trial 2 (MARS 2). Trials 2019 20, 598. https://doi.org/10.1186/s13063-019-3692-x

Taylor BH, Warnock C, Tod A. Communication of a mesothelioma diagnosis: developing recommendations to improve the patient experience. BMJ Open Respiratory Research 2019;6:e000413. http://dx.doi.org/10.1136/bmjresp-2019-000413