Narrative Explorations

Cripping Breath's narrative-informed research stream is co-led by a small team of community-based researchers, and supported by our narrative partner organisation, Pathfinders Neuromuscular Alliance.

Our researchers

Dr Suzanne Glover - Lead Community-based Researcher

An image of Suzanne next to a brightly coloured tree
Dr Suzanne Glover

I am an academic researcher with a lived experience of disability. I currently work for the University of Sheffield and Pathfinders Neuromuscular Alliance, a user led organisation, run by and for, people with muscle weakening conditions. My work is grounded in co-production methodologies in the context of life-limiting impairments. As the Research Officer for Pathfinders Neuromuscular Alliance, I have managed an international co-production study - learn more here. I have recently taken the post of Lead Community-based Researcher in Cripping Breath, where I'll be working with a small group of community-based researchers to collaboratively develop new understandings of respiration and respiratory health, in particular recognising the experiences of those who have had their life saved or sustained by mechanical ventilation. 

Dr Jennifer Kettle - Research Associate

Dr Jen Kettle
Dr Jen Kettle

I am a sociologist with an interest in everyday experiences of health and illness, focusing on how these are narrated, particularly in the context of families and personal relationships. Following my PhD in 2016, exploring the interconnections between two generations of mothers’ experiences of household work, I have worked at the University of Sheffield in the School of Clinical Dentistry. I have explored the significance of the mouth over the life course, generating fascinating 'mouth stories' through interviews with older people, and analysed the narratives of adults who have undergone jaw surgery. I have also been involved in a number of other projects, primarily interviewing patients, parents and health professionals as part of various clinical trials. Going forward, I am interested in exploring different ways of generating narratives and working closely with co-researchers, and I am very excited to be working on the narrative stream of Cripping Breath.

Come and join us as a Community-based Researcher!

Three disabled researchers and two assistance dogs sat at an office table
Collaborative analysis

In Summer 2024 we will be recruiting three community-based researchers - people with lived experience of respiratory illness who live on or with ventilation (technologies that support breathing).

These paid roles will involve joining the wider Cripping Breath research team, undertaking data collection and analyses, as well as supporting other project activities.

You do not need to have had experience of research before, all learning and training will be provided.

We will offer more information on this page soon!

Pathfinders Neuromuscular Alliance

Pathfinders Neuromuscular Alliance logo
Pathfinders Neuromuscular Alliance logo

One of Cripping Breath's partners is Pathfinders Neuromuscular Alliance. 

Pathfinders Neuromuscular Alliance is a user led charity, run entirely for and by people with muscle-weakening conditions. We provide social and support services, a range of information guides, events and outreach, and campaign on issues that matter to adults living with muscle-weakening conditions.

Learn more about Pathfinders Neuromuscular Alliance here