Everyday Stories of Breathing and Ventilation
Cripping Breath is looking for people with lived experience of ventilation to take part in research interviews.
Looking for interview participants
● Do you, or have you at some point, needed ventilation to support your breathing? (e.g. non-invasive ventilation (NIV), home mechanical ventilation (HMV)). You may use/have used BIPAP, CPAP, VIPAP etc. via a mask, mouthpiece or have a tracheostomy.
● Do you want to share your experiences as someone who uses, or has used, a ventilator or breathing support device?
We are looking for disabled and chronically ill adults in the UK to take part in two in-depth research interviews. We would like to speak to people who regularly use long-term ventilation to help with their breathing. We are interested in speaking to people who receive non-invasive ventilation (NIV) via a mask or mouthpiece, and to people who have a tracheostomy. We are also interested in speaking to people with long-term respiratory conditions who have previously spent time on a ventilator in a crisis situation.
We are interested in hearing your story of coming to ventilation or breathing support, what your life is, or was, like using ventilation, and your thoughts on wider issues that affect respiratory health. In the first interview, we’ll ask you to tell us your story of coming to use ventilation, and what that means to you. In the second interview, we’ll ask you more about your experiences, such as your day-to-day life, interactions with the NHS and views on issues such as the COVID-19 pandemic, air pollution and housing. Our interviewers are community researchers with lived experience of ventilation.
If you are interested in taking part, you will first speak to a researcher from the project to officially agree to take part, discuss any access needs and to provide some background information.
You will take part in two online research interviews, using Google Meet software. In order to make this more accessible, each interview will be around 30-60 minutes, so we are asking for around 1 to 2 hours of your time). We will arrange the two interviews at a time to suit you. After both interviews, we’ll send you a voucher to thank you for your time, and keep you informed about the project.
Interested in taking part?
If you are interested in taking part, please request an information sheet. If you have any questions, please contact the project researcher, Jennifer Kettle (j.e.kettle@sheffield.ac.uk).
