Research assistant Arthur Nye has surveyed current Orthoptic practice when giving information about nystagmus. Orthoptist and research assistant Anwen Coughlan helped develop the pack, with input from clinicians, Orthoptic students, patients and families.
The Nystagmus Information Pack is aimed at patients with nystagmus, families, teachers, other professionals and people who would like to find out more about nystagmus. The need for better information about nystagmus came from discussions at a Nystagmus Network event, particularly when people living with nystagmus, and their families, described struggling to explain nystagmus to others.
The Nystagmus Information Pack has been developed with funding from Nystagmus Network and the University of Sheffield. Thank you to all the patients, families, Orthoptic students and clinicians who inputted into the development of the pack; in particular those who attended the BIOS Northern Branch meeting: Newcastle, 2016. The pack has now been released and is being shared with Orthoptic Departments, BIOS and other professional groups. It is available to access and download for free and it is hoped it will be useful for patients and clinicians.
To access the Nystagmus Information Pack please visit: https://www.sheffield.ac.uk/oncology-metabolism/research/ophthalmology-orthoptics/research/nystagmusinfo
For further information, please contact:
Gemma Arblaster g.arblaster@sheffield.ac.uk
Anne Bjerre a.bjerre@sheffield.ac.uk
Dr Helen Griffiths h.griffiths@sheffield.ac.uk