Dr Madeleine Harrison
PhD, MPH, BSc (Hons)
Nursing and Midwifery, School of Allied Health Professions, Nursing and Midwifery
Research Associate
Full contact details
Nursing and Midwifery, School of Allied Health Professions, Nursing and Midwifery
Barber House Annexe
3 Clarkehouse Road
Sheffield
S10 2HQ
- Profile
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I have been working in the field of health services research since 2010. I first joined the University of Sheffield in 2014 as a Research Assistant in the School of Health and Related Research (ScHARR). Whilst in this role I was awarded a Stroke Association Postgraduate Fellowship and completed my PhD evaluating the intervention fidelity of self-managed computer therapy for aphasia post-stroke.
I joined the Division of Nursing and Midwifery in 2020 as a Research Associate to work on a study exploring the role of Mesothelioma UK clinical nurse specialists in meeting the palliative care needs of patients and families.
- Research interests
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My research interests centre on working with patients, carers and healthcare providers in order to understand their experiences of engaging with healthcare services and health technology, with the ultimate goal of improving service delivery. Methodologically, my interest and experience is in qualitative and mixed methods research.
Previous projects include:
- A process evaluation of intervention fidelity to self-managed computer aphasia therapy
- A randomised controlled trial exploring whether self-managed computer therapy can help people with post-stroke aphasia find more words (Big CACTUS)
- A qualitative study exploring patient, carer and health care professional’s experience of stroke care across South Yorkshire
- A qualitative study exploring patient and public involvement in stroke research
Current research projects:
- A mixed methods study exploring the role of Mesothelioma UK clinical nurse specialists in meeting the palliative care needs of patients and families
- Publications
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Journal articles
- Mesothelioma patient and carer experience research: A research prioritisation exercise. European Journal of Oncology Nursing, 102281-102281.
- Palliative care roles and responsibilities of mesothelioma clinical nurse specialists in the UK. Progress in Palliative Care.
- Clinical nurse specialist role in providing generalist and specialist palliative care : a qualitative study of mesothelioma clinical nurse specialists. Journal of Advanced Nursing. View this article in WRRO
- Patient and informal carers experience of living with mesothelioma: a systematic rapid review and synthesis of the literature. Lung Cancer, 156, S31-S31.
- Understanding the palliative care needs and experiences of people with mesothelioma and their family carers : an integrative systematic review. Palliative Medicine, 35(6), 1039-1051.
- What are the factors that may influence the implementation of self-managed computer therapy for people with long term aphasia following stroke? A qualitative study of speech and language therapists’ experiences in the Big CACTUS trial. Disability and Rehabilitation.
- Self-managed, computerised word finding therapy as an add-on to usual care for chronic aphasia post-stroke : an economic evaluation. Clinical Rehabilitation. View this article in WRRO
- Factors Associated With Adherence to Self-Managed Aphasia Therapy Practice on a Computer—A Mixed Methods Study Alongside a Randomized Controlled Trial. Frontiers in Neurology, 11, ---.
- Computerised speech and language therapy or attention control added to usual care for people with long-term post-stroke aphasia : the Big CACTUS three-arm RCT. Health Technology Assessment, 24(19), 1-176. View this article in WRRO
- Self-managed, computerised speech and language therapy for patients with chronic aphasia post-stroke compared with usual care or attention control (Big CACTUS) : a multicentre, single-blinded, randomised controlled trial. The Lancet Neurology, 18(9), 821-833.
- Challenges in building interpersonal care in organized hospital stroke units: The perspectives of stroke survivors, family caregivers and the multidisciplinary team. Journal of Advanced Nursing, 73(10), 2351-2360. View this article in WRRO
- Psychological and emotional needs, assessment, and support post-stroke: a multi-perspective qualitative study. Topics in Stroke Rehabilitation, 24(2), 119-125.
- Negotiating excess treatment costs in a clinical research trial: the good, the bad and the innovative. Trials, 17(1). View this article in WRRO
- Exploring patient and public involvement in stroke research: a qualitative study. Disability and Rehabilitation, 37(23), 2174-2183.
- Patients’ and carers’ experiences of gaining access to acute stroke care: a qualitative study: Table 1. Emergency Medicine Journal, 30(12), 1033-1037. View this article in WRRO
- Provision of palliative and end-of-life care in stroke units: A qualitative study. Palliative Medicine, 27(9), 855-860.
- Identifying the Active Ingredients of a Computerized Speech and Language Therapy Intervention for Poststroke Aphasia: Multiple Methods Investigation Alongside a Randomized Controlled Trial. JMIR Rehabilitation and Assistive Technologies, 10, e47542-e47542.
- Developing, monitoring, and reporting of fidelity in aphasia trials: core recommendations from the collaboration of aphasia trialists (CATs) trials for aphasia panel. Aphasiology, 1-23.
- Patients’ and informal carers’ experience of living with mesothelioma: A systematic rapid review and synthesis of the literature. European Journal of Oncology Nursing.
- Understanding the Experiences of end of Life Care for Patients with Mesothelioma from the Perspective of Bereaved Family Caregivers in the UK: A Qualitative Analysis. Journal of Palliative Care, 082585972210792-082585972210792.
- View this article in WRRO Service change and innovation in community end-of-life care during the COVID-19 pandemic: qualitative analysis of a nationwide primary care survey. Palliative Medicine.
Conference proceedings papers
- 69 New research-based resources to facilitate engagement with palliative care for patients and families living with mesothelioma. Lung Cancer, Vol. 190 (pp 107630-107630)
- Patient and Public involvement in stroke research in the UK: a qualitative study. International Journal of Stroke, Vol. 3(8) (pp 18-18)
- Key Stakeholders Recognize the Need for a Structured Approach to Psychological Support with Input from a Clinical Psychologist. STROKE, Vol. 44(2)
Other
- Grants
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Stroke Association Postgraduate Fellowship: Evaluating the intervention fidelity of self-managed computer therapy for aphasia post-stroke. (2014-2019)