Outputs and resources

Publications from the Disability Matters team

spiral metal images of disability and ability
spiral metal images of disability and ability
Off

We are the home to an emerging  Disability Matters Scholarship collection and help curate Disability Dialogues.  We are committed to a non-extractive model of Open Data - which we will share via this page. For resources and information in accessible formats, visit here.

Below are some of our work:

Publications 

Methodological advances

(1) Depathologising Open Science
(2) Disability-informed research methods
(3) Disability-driven forms of Knowledge Exchange

Influence on Policy and practice

Datasets
Other research outputs

Conferences presentations
Lectures, seminars, and talks
Blogs
Podcasts
Films

If you have questions about our research, please get in touch.


Publications


2026

Mishra, A., & Jain, G. (2026). "Where is the love in my work?": Developing a restorative love praxis for ethical qualitative inquiry. Methods in Psychology, 15, 100269. https://doi.org/10.1016/j.metip.2026.100269.
 
Lee, C. (2026). Crip Zen Foucault: Sick Aesthetics and the Care of the Disabled Self.  Feminist Philosophy Quarterly, 12(2/3). https://ojs.lib.uwo.ca/index.php/fpq/article/view/27032.
 
Goodley, D. and Lawthom, R. (2026) ‘A Narrative Exposition of the University, Disability and the Non-Disabled Academic’, Scandinavian Journal of Disability Research, 28(1), p. 249–264. Available at: https://doi.org/10.16993/sjdr.1411. 
 
Chatikobo, T., Griffiths, F., Hayden, N., Leeming, G., Mishra, A., Morris, E., Schirru, L., Sheehan, N., Williams, A. and Sekalala, S. (2026) Open Science, Health Data and Epistemic Harms: A Multidisciplinary Reflection. Data Science Journal, 25: 15, pp. 1–9. DOI: https://doi.org/10.5334/dsj-2026-015
 
Chen, K. L., Titchkosky, T., Pope, W., Miller, D., & Gao, Q. L. (2026). The Social Production of Disability in Encounters with Ontario’s Right to Read Inquiry: Beyond the Models of Disability. Canadian Journal of Disability Studies, 15(1), 199–227. https://cjds.uwaterloo.ca/index.php/cjds/article/view/1351
 
Titchkosky, T., and Cagulada, E. (2026). 'Disability and Phenomenology' (9 Apr. 2026), in David Bolt (ed.), Oxford Research Encyclopedia of Disability Studies (New York, NY, online edn, Oxford Academic), https://doi.org/10.1093/9780197852668.003.0025

Wong, M., Mishra, A., & Quyoum, A. (2026). ‘Zine-ing’ research otherwise: care, joy, and creative co-design with racially marginalised communities. Journal of Creative Research Methods (published online ahead of print 2026). https://doi.org/10.1332/30502969Y2025D000000011
 
Menon, A. R., & Titchkosky, T. (2026). Unboxing disability communication: Exploring the methodological contours of critical disability research in public health archives. Social Sciences & Humanities Open, 13, Article 102668. https://doi.org/10.1016/j.ssaho.2026.102668
 
Titchkosky, T. (2026). Fascism taking Flight on a Disability Runway: Analyzing Trump’s Disability Degradation in Turbulent Times. In Disability in Turbulent Times. Edited by Patty Douglas, Harriet Cameron and Katherine Runswick-Cole. Cheltenham, Gloucester: Edward Elgar Publishing. https://www.elgaronline.com/edcollchap/book/9781035347254/chapter1.xml 
 
Goodley, D. (2026) Foreword. . In Disability in Turbulent Times. Edited by Patty Douglas, Harriet Cameron and Katherine Runswick-Cole. Cheltenham, Gloucester: Edward Elgar Publishing. https://www.elgaronline.com/edcollbook/book/9781035347254/9781035347254.xml?rskey=MmWsbd&result=2. 
 

2025

Lee, C. (2025). ‘Buddhist Self-Help Healing Narratives and the Meditative Turn’. In Therapy, Spirituality, and East Asian Imaginaries, edited by Ioannis Gaitanidis, Sang-yun Han, Luis Fernando Bernardi Junqueira, and Avery Morrow. Amsterdam University Press.

Leach Scully, J. (2025).Disability and AI: Much more than assistive technologies.Science, 389, DOI:10.1126/science.aea4918

Cagulada, E. (2025). Breathing Speaks of God: Exploring a Moment's Unfolding Through Interpretive Disability Studies” (Canadian Theological Society ... https://cts-stc.ca/2025/05/21/cts-2025-final-schedule/ ). 

Goodley, D., Liddiard, K. and Lawthom, R. (2025). The Depathologising University, Scandinavian Journal of Disability Research, 27(1), p. 120–133. Available at: https://doi.org/10.16993/sjdr.1240. How might we think of university bureacracy and administration as well as researcher support as opportunities to enhance  a disability studies agenda in the university?

Dew, L., Evans, H., Gauthier-Marmaril, E., Jones, D. P., Kill, C., Lee, C., Mishra, A., Phillips, S., Soorenian, A., & White, L. (2025). Imagining the anti-ableist university. GEOZONe. Imagining the anti-ableist university – GEOZONe 

2024

Lamanna, J. (2024). Arriving Late: The lived experience of women receiving a late autism diagnosis. Jessica Kingsley Publishers.

Goodley, D. (2024). Disability Studies: An interdisciplinary introduction. Third Edition. This book references Disability Matters as a Case Study for exploring questions of theory, methodology and research. 

Liddiard, K., Atkinson, L., Evans, K., Gibson, B., Goodley, D., Hale, J., Lawson, R., Runswick-Cole, K., Spurr, R., Vogelmann, E., Watts, L., Weiner, K., and Whitney-Mitchell, S. (2024) '“No-one’s contribution is more valid than another’s”: Committing to inclusive democratic methodologies', Research in Education: Democratic Methodologies in Education Research (Special Issue). Online first available here. 

Titchkosky, T. (2024). Interpretive Methods in Disability Studies: Dyslexia Inflected Inquiry. Qualitative Inquiry, 0(0). https://doi.org/10.1177/10778004241254394. explores how disability studies can take shape as an interpretive method and how disability-perception can influence this.

Goodley, D. (2024). Depathologising the university. Pedagogy, Culture & Society, 1–18. https://doi.org/10.1080/14681366.2024.2316007 This paper develops a conversation with decolonisation to pitch a novel mode of engagement; depathologising the university.  The paper is Gold Open Access and available here

Chataika, T. and Goodley, D. (2024). The Routledge Handbook of Postcolonial Disability Studies. London: Routledge, published March 2024). Led, curated and driven by Dr Tsitsi Chataika - with editorial input from Disability Matters's Dan Goodley - this exciting new text challenges the Western, European and North American tendencies of critical disability studies through centring and exploring postcolonial theory. More details can be found here

2023

Goodley, D. (2023). Disability and medical posthumanities. Interconnections: Journal of Posthumanism. Acknowledges Disability Matters as a space in which colleagues are grappling with the pull and push of humanism and posthumanism.

Zhuang, V., Wong, M.E. and Goodley, D. (Editors). (2023). (Eds).  Not Without Us: Perspectives on Disability and Inclusion in Singapore. Singapore: Ethos Books. A ground-breaking text that, for the first time, brings together disabled scholars, community organisers and artists to centralise questions of disability in the Singaporean context. Here is a link to an online discussion about the book.


Methodological advances


(1) Depathologising Open Science

Methodological Advance: We are working with researchers from critical disability studies and other transformative spaces to develop an approach to Open Research that is tune with the aspirations of disabled people
Intended users or audience of the Methodological Advance: Researchers, disabled people’s organizations, funders
Link to the relevant repository or publications for this output: Chatikobo, T., Griffiths, F., Hayden, N., Leeming, G., Mishra, A., Morris, E., Schirru, L., Sheehan, N., Williams, A. and Sekalala, S. (2026) Open Science, Health Data and Epistemic Harms: A Multidisciplinary Reflection. Data Science Journal, 25: 15, pp. 1–9. DOI: https://doi.org/10.5334/dsj-2026-015


(2) Disability-informed research methods

Methodological Advance: We are developing a suite of materials and research methods that are repsonsive to the perspectives and aspirations of disabled people
Intended users or audience of the Methodological Advance: Researchers, disabled people’s organizations, funders, policy-makers
Link to the relevant repository or publications for this output: Easy read summaries, inclusive formats of information sheets, consent forms, etc.

Easy Read summaries of our work (produced by Speakup Self-advocacy)

Introduction to the Disability Matters programme 
Scholarship Phase of our work 

Inclusive ethics films

During our work in Phase 2, Ankita Mishra worked with DPO colleagues to create accessible films explaining the research and consent as well as the principles of Open Research. Below are four examples (you can find the other versions on our Priorities page)

Inclusive, accessible multi-lingual consent form as an animated film combining Indian Sign Language and audio (in Odia)
nclusive, accessible multi-lingual explanation of Open Research as an animated film combining Indian Sign Language and audio (in Odia)
Inclusive, accessible multi-lingual explanation of the Health Priorities research phase as an animated film combining Indian Sign Language and audio (Odia)
Inclusive, accessible multi-lingual consent form as an animated film combining Indian Sign Language and audio (in Odia)

(3) Disability-driven forms of Knowledge Exchange

Methodological Advance: Curating modes of engagement than promote inclusive forms of knowledge engagement
Intended users or audience of the Methodological Advance: Researchers, disabled people’s organizations, funders, policy-makers, practitioners, general public
Link to the relevant repository or publications for this output:

Disability Matters Together: International Conference 2026

The Disability Matters Together: International Conference 2026 was the first major conference for Disability Matters. The conference was attended by researchers, delegates from partner Disabled People's Organisations, and colleagues from the UK, India, Canada, Australia, and Singapore. The purpose of this conference is to to bring together our international programme team across multiple days to build connections, community, care and joy. 

Singapore conference film - coming soon!

disability matters conference banner
disability matters conference banner with conference logo, keywords, and university logos on the bottom

Influence on policy and practice


Area: Inclusive research cultures for disabled researchers and research professionals
The Disability Matters programme is collaborating with the Wellcome Anti-Ableism Research Culture (WAARC) team at the University of Sheffield (a project funded by Wellcome's Institutional Fund for Research Culture) to share recommendations pertaining to (1) the recruitment and employment of disabled researchers and research professionals; (2) promotion of accessible events and inclusive forms of research and (3) promoting university collaboration with disabled people's organisations in university research.
Link to this work: https://sheffield.ac.uk/ihuman/waarc 


Datasets


Title of Dataset: Disability Matters in Health Research
Description: Open Access qualitative data and co-produced data created by the Disability Matters team in collaboration with disabled people that (i) identifies the health priorities of disabled people; (ii) captures methodologies and methods that centre disabled people as research collaborators; (iii) details keep thematics pertaining to the production of inclusive research cultures and environments and (iv) documents representations of disability in healthcare and health research; (v) represents key mechanisms and activities for supporting the career development of disabled and disability-positive researchers and (vi) details forms of knowledge exchange whereby disability informs policy and practice in relation to Equality, Diversity and Inclusion.
Intended users: Researchers, funders, policy-makers, disabled people, disabled people's organisations, NGOs, INGOs, service providers, healthcare practitioners, system leaders.
Link to the repository: The UK team will make the Data available a repository recognised by Wellcome. We are also liaising with our international colleagues to ensure that they share their data via a repository recognised by the Wellcome Trust.
As our research progresses, and we make out data available, we will obtain a specific DOI via the UK Data Archive. For updates and links to our data we will use this page of our programme website: https://sheffield.ac.uk/ihuman/disability-matters/outputs 


Other research outputs


Conferences presentations

Professor Jackie Leach Scully presented Perspective shift: putting disability at the centre of health research 18th World Congress of Bioethics & Feminist Approaches to Bioethics Congress 2026, JOHANNESBURG • SOUTH AFRICA.

Leeds Disability Studies Conference, 2026
The Sheffield team Rhea Halsey, Ankita Mishra, Christina Lee, and Dan Goodey delivered a paper on "Centring Disability in the Academy: Research Priorities, Knowledge Exchange and Career Development".

Singapore Health & Biomedical Congress, 2025
In October, together with Singapore disability scholar Assistant Professor Rachel Chen from Linguistics and Multilingual Studies at Nanyang Technological University (NTU), Kerri presented at the Singapore Health & Biomedical Congress 2025. This presentation, titled "Communicating with Patients with Disabilities," was part of the NTU Medical Humanities Satellite Conference and received positive audience engagement. 

Nordic Network on Disability Research (NNDR) conference, 2025
Rhea Halsey, Liz Dew, and Lucy Dunning presented a paper on professional services and disability inclusion at the Nordic Network on Disability Research (NNDR) conference “Disability in Local and Global Contexts” in early May 2025. Rhea, Liz, and Lucy's paper was adapted and presented at the online symposia in July. Read the script and watch the recording here.

Disability Studies Conference, Leeds, 2024
Members of the team reported on the challenges of supporting disability research in the neoliberal academy with reference to a working paper written by Rhea Halsey, Dan Goodley and Rebecca Lawthom

2nd International Conference on Disability Studies, Thessaloniki, 2024
Rhea Halsey and Dan Goodley presented papers on behalf of the Disability Matters programme at the 2nd International Conference on Disability Studies: Disability Matters: Critically Examining Disablism and Ableism: A collaboration between the Aristotle University of Thessaloniki, Faculty of Education, Department of Primary Education, School of Education, University of Sheffield, and iHuman, University of Sheffield.

EDIS Inclusive Leadership, 2023
Dan Goodley was invited to present as part of a panel on Inclusive Leadership at the EDIS2023 event at the Francis Crick institute in London. Dan joined Hamied Haroon, the Chair of National Association of Disabled Staff Networks, to lobby for the centralisation of disabled people in the conceptualisation and management of research. 

Nordic Network of Disability Research, 2023
Dan Goodley offered a soft international launch of the Disability Matters programme during a session to the Nordic Network of Disability Research which was held in Iceland this year. For many this was a first time to reconnect with critical disability studies scholars post-pandemic. Dan joined other members of the Critical Disability Studies team to present on their research and scholarship. A flyer introducing our work with links to project websites can be found here.

 

Lectures, seminars and talks

Building Anti-Ableism Through Representation in Children’s Material Culture, 2026
Christina Lee presented at the BPS funded seminar series titled “Building Anti-Ableism Through Representation in Children’s Material Culture.” The series is hosted by Queen Margaret University, the University of Strathclyde, and the University of Cambridge.

Wong, Meng Ee. (2025) Vision Rehabilitation Conference 2025 organized by the Singapore Association of the Visually Handicapped in August on the topic: Stigma Against the Blind and how to Overcome it.

Wong, Meng Ee. (2025). Define Success Conference 2025 co-organized by the Singapore University of Social Sciences and University of Leeds in September on the topic: Rethinking Merit through the Lens of Disabled Persons Navigating VUCA Environments

Wong, Meng Ee. (2025). Education Exchange Series organized by the National Library Board and National Institute of Education in November on the topic: No Learner Left Behind: Growing an Inclusive Singapore Together.  

Wong, Meng Ee. (2025). NUS SSR-TOUCH Conference on Sustained Well-Being in Future-Ready Communities in November with the topic: Layering Technology to Reframe Merit: A Disability-Inclusive Vision for Future-Ready Communities.

Wong, Meng Ee. (2025). Moderated public forum entitled: Tech Talks: Using Technology to Create Inclusive Spaces at the Singapore Writer's Festival in conjunction with Singapore Week of Innovation and Technology. 

In September and October, Kerri also gave guest lectures at an NTU Sociology Deviance and Society module, and the National University of Singapore’s Master’s in Urban Planning (NUS MUP) module Qualitative Research for Urban Planning. In these guest lectures, she shared about her Bachelor’s and Master’s research on disability, identity, employment, and education, and also offered insights into improving NUS MUP students’ final research projects on urban planning and Singapore society. 

‘The Depathologising University’, 2025
The Inclusion Leadership Research Interest Group hosted an event on Thursday 19th June 2025, entitled . The RIG’s Co-Convenors, Dr Beth Holmes, Dr Wendy Conrad and Dr Donnie Adams, were joined by guest speaker, Professor Dan Goodley, Professor of Disability Studies and Education in the University of Sheffield’s School of Education, who discussed his work in the field of Critical Disability Studies, and the ways in which academics, researchers and research professional colleagues are depathologising the disablist and ableist university. You can find a recording of Dan's talk here

International Perspectives – Being human as praxis: People with learning disabilities are theorists, researchers and influencers” / Internationale Perspektiven – Menschsein als Praxis: Menschen mit Lernschwierigkeiten als Theoretiker*innen, Forscher*innen und Influencer
Dan Goodley delivered this seminar on 2nd December 2025 as part of the Wintersemester 2025, ZeDiS-Ringveranstaltung: Revival Intersectional Studies 2.0: Strategien gegen die systematische Demontage kritisch-emanzipatori scher Wissenschaft – Wege zur nachhaltigen Institutionalisierung der Disability Studies, Centre for Disability Studies, Protestant University of Applied Sciences for Social Work & Diaconal Studies. Rauhe Haus Foundation in Hamburg.

Disability’s Exposition of the Academy: A composite narrative of belonging, community, capacity, and mutuality
Dan Goodley presented this online seminar on the 3rd November 2025, to the USA Society for Disability Studies Seminar.

Addressing Ableism in Academia
Tanya Titchkosky presented at this event organised by by the Centre for Research and Innovation Support (CRIS) at the University of Toronto.  Thursday, Oct 2 2025, 1:00-2:30 pm

The Body Keeps Me Questioning: 100 Years of Frantz Fanon Symposium 
Tanya Titchkosky and Elaine Cagulada each presented a paper at this symposium, held on 17th October 2025, hosted by Trinity Colleague, University of Toronto.

Tanya Titchkosky was a discussant to a paper presented at this launch event on the 25th November 2025.
 
Christina L. (2024). 'Crip Kinship, kindness and crisis of care' lecture at University of East Anglia, 27th November 2024.

Blogs

Recounting of "NEDA: Words for My Darling" — Dr. Tanya Titchkosky Reflects on Dr. Elaine Cagulada’s Poetry Reading, 2026
On February 4, 2026, Dr. Elaine Cagulada performed a poetry reading, Neda: Words for My Darling. The following piece is a recounting of the night written by Dr. Tanya Titchkosky, Professor of Disability Studies in SJE, on February 8, 2026.

Disrupting the Default: Anti-Ableist Research Culture, 2025 
Dan Goodley and Rebecca Lawthom have reflected on the challenges of curating more inclusive university cultures in their recent blogpost for the White Rose Consortium In this piece they consider the aspirations of disability studies to fundamentally reimagine and re-create an academic environment that actively values disability as a source of creativity, critical insight and collective strength. The peice refers to the work of WAARC but is directly informed by the international work of Disability Matters.

'Masking in the Margins: Navigating Academia as Disabled/Chronically ill Women of Colour', 2025
Ankita Mishra's blog post for the Centre for Equity and Inclusion examines the everyday negotiations faced by disabled and/or chronically ill women of colour in academia through composite narratives.

'Transforming Equity, Diversity and Inclusion (EDI) Through Disability', Polyphony, 2025
Christina Lee explores the concepts and metaphors behind the town hall event and why it is important to centre disability in equity, diversity, and inclusion.

'Disability Matters: Thinking critically about Equality, Diversity and Inclusion', Polyphony, 2023 
This article offers a provocation challenging Equality, Diversity and Inclusion discourse from a critical disability studies perspective - written by Dan Goodley and Kirsty Liddiard.

Podcasts

Ethics in Practice podcast, 2025
In this episode, Nicole Redvers and Christina Lee share their experience of resisting hierarchies and creating space for alternative ways of thinking and being in academia.

Podcast, Conversations about Arts, Humanities and Health, 2023 
Refers to a series of free, online events where scholars, health professionals, and the public discuss how arts and humanities can inform healthcare. Hosted by The University of Kent and with the support of the Churchill Foundation, these events seek to develop meaningful dialogue and connection between humanities and medicine. Dan Goodley joined colleague Kirsty Liddiard to discuss the ways in which Disability Matter's Scholarship work offers a paradigm shift to disability as driving subject in the medical humanities. A link to the podcast can be found here
 


Films

A series of short films explaining the different phases of the Disability Matters Programme - https://player.sheffield.ac.uk/series/what-disability-matters-project 

A film by Dan Goodley explaining the developments phase of Disability Matters
A film by Ankita Mishra explaining Phase 2 Health Priorities of Disability Matters
A film by Jodi Lamanna explaining the methodologies phase of Disability Matters
A film by Kerri Heng Ping explaining the research environments phase of Disability Matters
A film by Elaine Cagulada explaining the University of Toronto research work on representations
A film by Christina Lee explaining how Disability Matters is transforming knowledge around health and research through disability
A film by Sandeep R Singh explaining the Visiting Scholar programme of Disability Matters


 

Robot reading books

iHuman

How we understand being ‘human’ differs between disciplines and has changed radically over time. We are living in an age marked by rapid growth in knowledge about the human body and brain, and new technologies with the potential to change them.

Centres of excellence

The University's cross-faculty research centres harness our interdisciplinary expertise to solve the world's most pressing challenges.