Palliative care and bereavement
These resource relate to the provision of palliative and end of life care in mesothelioma, and support with bereavement.
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Resources to download
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- What is Palliative Care? - an infographic for professionals to share with patients and their families, which helps to explain and demystify what palliative care means.
- Mesothelioma and Palliative Care - an infographic for clinical teams, which aims to raise awareness of mesothelioma and the importance of talking about palliative care early on in the patient journey.
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Videos
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- Palliative care in mesothelioma - an animation about our Palliative Care study findings and the role of palliative care in mesothelioma.
- Conversations about Palliative Care - a panel discussion event which brought together researchers, healthcare professionals, and people living with mesothelioma and their families.
- Reports
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- Palliative Care Project report - the final report for our study which explored the palliative care needs, outcomes and experiences of patients with mesothelioma and their family carers. It also explored how Mesothelioma UK Clinical Nurse Specialists (CNSs) seek to meet those needs in terms of the interventions they employ, care they provide and the ways they work with other health care providers.
- Publications and articles
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- Mesothelioma palliative care needs: supporting patients and families with new research-based resources. British Journal of Community Nursing.
- Clinical nurse specialist role in providing generalist and specialist palliative care: A qualitative study of mesothelioma clinical nurse specialists. Journal of Advanced Nursing, 00, 1– 10. https://doi.org/10.1111/jan.15277
- Understanding the Experiences of end of Life Care for Patients with Mesothelioma from the Perspective of Bereaved Family Caregivers in the UK: A Qualitative Analysis. Journal of Palliative Care. February 2022. doi:10.1177/08258597221079235Harrison M, Darlison L, Gardiner C.
- Caring for mesothelioma patients and their families in primary care: new tools to enable early-stage engagement with palliative care. BJGP Life. 9 December 2022
- Palliative care roles and responsibilities of mesothelioma clinical nurse specialists in the UK, Progress in Palliative Care, DOI: 10.1080/09699260.2022.21582
- Understanding the palliative care needs and experiences of people with mesothelioma and their family carers: An integrative systematic review. Palliative Medicine. April 2021. doi:10.1177/02692163211007379
- Role and support needs of nurses in delivering palliative and end of life care. Nursing Standard. 2021 doi: 10.7748/ns.2021.e11789