Co-production and participatory research
Examples and examplars of participatory research evidencing universities working in collaboration with disabled people's organisations
Promoting equality, diversity and inclusive in research ethics policy and practice - Kirsty Liddiard and Sophie Phillips worked with Jennifer Burr (Medicine and Population Health) to explore the most appropriate ways of addressing ED&I in research ethics policy and processes. This work linked with Ethical Research and Equality, Diversity and Inclusion films produced by the PRN which included WAARC's Lauren White. These Four short videos outline the opportunities and challenges of doing inclusive and ethical research, based on reflections from participatory and collaborative research projects across the university.
Kirsty Liddiard led the Why Can't we Dream Coproduction project with young disabled people with life-limiting and life-threatening impairments which includes the Living Life to the Fullest Co-Production Toolkit: an approach that centres co-researchers in the research process.
Lauren White has worked in collaboration with members of the Maker{Futures} programme team on a journal article that explores ways of collaboratively with Disabled Young People as Researchers, Designers and Makers and has led models of research project on the Reimagining Trustworthy Autonomous Systems with Young People
Medications and my mental health offers co-produced resources to support conversations about mental health with people with learning disabilities
Tired of spinning plates: a rapid scoping review of the mental health needs and mental health support of carers of adults with learning disabilities in the United Kingdom. International Journal of Disability and Social Justice. This paper is a co produced rapid scoping review of the literature about mental health and carers of adults with learning disabilities. Evidence synthesis is rarely carried out in co-production with disabled people and family carers and this article aimed to open up the process
Human activism with Speakup Self-advocacy presents a number of co-produced films with self-advocates with learning disabilities who reflect on the support, community, employment and comradeship that helps them to live the kinds of lives that they desire.
ScHARR Mini Master Class in Health Research #8 Dr Liz Croot and guests - Doing Research with People with Learning Disabilities - thinking differently about doing research through co-production.
Humanising Healthcare showcases the humanising healthcare practices created by researchers with learning disabilities including colleagues from WAARC partners Speakup Self-advocacy and Sheffield Voices and reflects on participatory approaches to research from ethics through methods, analysis to dissemination and Open Research. Humanising Healtcare is also developing Humanising approaches to Open Data and Open Research - Nikita Hayden, Bojana Daw Srdanovic and Dan Goodley have written a document entitled 'Thinking of using this dataset? Read the team’s approach to Open Data that involves people with learning disabilities'. This explains how we have approached Open Data with a firm commitment to the lives and aspirations of people with learning disabilities - and a continued engagement with co-production. This document is a compulsory read for anyone who wants to use our data which. This document and the data can be found here deposited here
Impact of advocacy - by Speakup Self-advocacy - many reflections on the power of self-advocacy
WAARC is also connecting with other Wellcome funded projects at the University of Sheffield that promote participatory methods:
Connections with the Wellcome Trust Discovery Award Cripping Breath - Kirsty Liddiard and her team are exploring a number of matters pertaining to the promotion of positive research culture and are documenting some of their thoughts and consideration in their excellent blog here
Sharing knowledge with colleagues on the Wellcome Trust Discretionary Award Disability Matters especially the work on promoting the work being undertaken on positive research environments, knowledge exchange and growing a new cadre of disabled and disability-positive researchers.
iHuman
How we understand being ‘human’ differs between disciplines and has changed radically over time. We are living in an age marked by rapid growth in knowledge about the human body and brain, and new technologies with the potential to change them.