Patient and Public Involvement (PPI) resources

Alongside our PPI panel, the Palliative Care Studies Advisory Group, we have developed and curated a range of free resources for researchers, patients and the public, to support good PPI practice in palliative care research.  

Reports and papers

Briefing paper - The role of PPI in palliative care research

Recipe book - Advice and guidance for PPI in palliative care research

Community Researcher Toolkit - A toolkit for engaging community research link workers to increase research participation power for underserved communities.

Research article - A framework for more equitable, diverse and inclusive PPI in palliative care research

Research article - Patient and Public Involvement in palliative care research

Videos

What it's like being involved in a Patient and Public Involvement panel:

Other free resources

UK Standards - For patient and public involvement in research

PIRIT - Public Involvement in Research Impact Toolkit, to help researchers plan, conduct and evaluate meaningful PPI