iHuman blog archive

Blog

End of Project Blog

Reflections on the end of the TAS and Disabled Young People Blog

3D rendering Futuristic design of Virus exploding

Disability and COVID-19: the global impacts

COVID-19 presents a threat to life and liberty to people across the globe. In this series of blogs, the authors write about the impact of the pandemic on the lives of disabled people and their families in their communities.

Futuristic Healthcare

Eva Hilberg from our drug orphanisation team travelled to Boston (MA) to engage with thought about the future of healthcare

Futuristic Healthcare

Audience member perspective of the keynote panel discussion at the World EPA Congress 2023 — World EPA Congress - 2023

Fieldnotes: Attending the World EPA Congress 2023

The drug orphanisation team attended the world's largest pharmaceutical conference on evidence, pricing, and access (World EPA Congress), and saw a shift in narrative from market sustainability to health equity.

The World EPA Congress and shift towards access equity and niche markets

Six tall terraced houses shown from across a canal in Utrecht. Railings in the foreground. — Utrecht

Fieldnotes: Attending the Social Pharmaceutical Innovations (SPINs) Congress 2023

The drug orphanisation team met with clinicians, pharmacist, economists, and other social scientists to look how we might develop new, more socially-oriented, ways of reducing the the high price of orphan drugs (medicines for rare diseases).

Social pharmaceutical innovations (SPINs) in an era of orphanisation

Neon sign in a shop window with the text "WHAT IS YOUR STORY?" — Etienne Girardet - Unsplash

Focus on patients’ stories

Eva Hilberg launches a new, interdisciplinary strand of research, developed in collaboration with Erasmus University Rotterdam which seeks to better understand the power of patient stories.

Focus on patients’ stories

View from back of the room in a large lecture hall, red walls, people seated with backs to the camera — A talk at IRDiRC 2022

Fieldnotes: Attending IRDiRC / (Re)Act 2023

The drug orphanisation team met regulators, scientists, and patient organisations in Berlin to discuss the future of rare disease medicine, the relevance of Sony's upcoming PS6 games console, and reimbursement challenges for digital health technology

Working towards standardisation and collaboration across rare disease research

Fostering cultures of open qualitative research

Matthew Hanchard launches a new project =, with Research England 'Enhancing Research Cultures' Funds to look at the practices and epsitics of open qualitative research

Project site: Fostering-cultures-open-qualitative-research

picture of creative session — picture of a creative session

Creative workshop: picturing experiences of a rare disease

A creative workshop was held in March 2023 in collaboration with an artist and clinical practitioners.

Science Told Me (But I Couldn't) See the Point

Like a warm hug

Gareth Bramley reflects on this iHuman ECR methods and methodologies symposium

Blog reflection on a recent iHuman symposium

An image of a speaker, holding a microphone, giving a talk

Reflections on the Ihuman Early Career Researcher Methods Symposium

Written by Dr Natalie Wotherspoon, Mildred Blaxter Post-Doctoral Fellow, Funded by the Foundation for the Sociology of Health and Illness.

Reflections

Wakefield Arthouse — Image shows five women of different ages against a grey door and white wall with artworks displayed behind them. The women are smiling.

Re-Emerge? Different perspectives on the experiences of parents during Covid19 and the opportunities of creativity

Reflections on the ESRC Festival of Social Sciences ‘Understanding Society’ event on 1 November 2022
Dr Jessica Bradley, School of Education, University of Sheffield

Re-Emerge?